| | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Hi -
It was my son's friend. He had just turned 30 when he got the diagnosis. From the first visit to his dentist to surgery, it was one month. They didn't mess around. He said he practically fell off the operating table, he was shaking so much.
His was in the front of his palate, so he is missing 4 or 5 front teeth. He had no risk factors - nonsmoker, not a heavy drinker.
Stories like his *do* give us hope.
I know ChrisP won't be reading this for a while, but my thoughts are with her.
Marlene
[quote=mightymouse]Hi, Marlene-
Wow, 8 years cancer-free! That's great. I'm glad your friend's son did so well. Good to hear that his public speaking hasn't been affected at all. I can only hope for such good results myself - am using all my positive thinking powers.[/quote]
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: May 2009 Posts: 132 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2009 Posts: 132 | Thanks, EZ, my blender is at the ready and I'll stock up on rotini and angel hair!
Chrissy
Stage 2 SCC upper right palate
Hemi-palatectomy and maxillectomy 5/28/09
Six teeth gone
IMRT x30 starts July 13. Completed 8/26/09
Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.
| | | | | Joined: May 2009 Posts: 1,413 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,413 Likes: 1 | I will be praying for your surgery to go well. You came to the right place for support. Good Luck.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Hey, Chris,
Well, tomorrow's the day, right? I'll surely be thinking about you, and I meant it when I said to email or call if you or your caregivers want to ask anything at all.
Don't concentrate on what you may lose, focus on what you'll gain--good health, a future cancer-free, blessings galore if you keep your eyes open. You will be fine, and in the process, you will have the love and support of many.
Good luck tomorrow and in your recovery period. Call or write at any time.
XO--Colleen
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Actually Colleen, which cream you use is important, not necessarily for the massage, but for its healing powers. I used Biafine which is the same cream I was given for radiation burns. It is a deep healing wound vitimin E cream. My doctor said any vitamin E cream would do, but when I mentioned Biafine, he seemed very pleased with my choice. It is or at least was precription 12 years ago( is it really that long) so you'll need at script.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: May 2009 Posts: 132 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2009 Posts: 132 | Well, I'm done! Had the surgery day Thursday, and they released me from the hospital yesterday (Saturday) -- boy was I ready to get out of there! The surgery went well; they got it all out. Thank you, everyone who has written, for your support and well wishes -- it made a huge difference to me to be heading into surgery with a sense that there were others out there with similar situations. I feel like I gained an entire community in such a short amount of time - this forum is awesome.
Chrissy
Stage 2 SCC upper right palate
Hemi-palatectomy and maxillectomy 5/28/09
Six teeth gone
IMRT x30 starts July 13. Completed 8/26/09
Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.
| | | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | WOW! You must have done great to be back home and posting on the internet already! Tell us what they ended up doing in your surgery......or email me. I am pleased to know that you have such a good start. Call or write anytime.
XO--Colleen
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Congratulations, Chris!
You will be sore for a while, the swelling will go down in a few days. Take care of yourself.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | |
| Forums23 Topics18,306 Posts197,298 Members13,504 | | Most Online7,516
Mar 21st, 2026 | | |
|
