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Charm2017 #95820 05-20-2009 08:26 PM
Joined: Jan 2009
Posts: 253
Gold Member (200+ posts)
Gold Member (200+ posts)

Joined: Jan 2009
Posts: 253
Charm:
Thanks for the info. I spoke to my doctor's nurse regarding one, and she said she didn't think I needed one, and that the Thermbite is more beneficial for rehabitative. For the time being, I'm going to be very conscientous about my exercises.

I get the feeling that my medical staff is not interested in preventative care. I'm always ahead of the game with them.
I must be driving them crazy.

Thanks again for the infl

Sandy



Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter

SandySt. #95849 05-21-2009 03:20 PM
Joined: Jun 2007
Posts: 10,507
Likes: 8
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 8
Sandy, you are very fortunate to be an informed patient. Going thru chemo and radiation really kicked my butt. I didnt post too often so was caught completely unaware. Ive been thru so much trying to regain a more normal range of motion and dont think I will ever get there. Its so much better to be ahead and not suffer from trismus. Being proactive is definetly a much easier way than waiting til you have something and trying to fix it.

Best of luck with your treatments.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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