#95561 05-15-2009 07:07 PM | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | I have been reading a lot these last few days and have learned so much from all of you. I have learned alot especially from the FAQ forums. One thing I was toying with was the herbal remedies as I have had a few people in my circle friends tell me about some herb that has been healing people of cancer. I just has my husband by it and it cost a lot of money. After reading more, I have come to my senses. I guess you get desperate at times. I told my husband to cancel the order and he said that he couldn't as it already went through. GUess I will use for the next three months along with the medical treatments and not buy it again. I am so thankful that I found this place. YOu all are so awesome and encouraging.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Aug 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 42 | Make sure you check with your doctor before taking them. People used to send stuff like that to my mom and her doc almost had a stroke when he thought she had taken it. Be careful and good luck!
Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Yes let your doctors decide if you should take it. You have already lost the money but that doesn't mean use should use it if it might harm you or mitigate the effect of the real Tx.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | I agree with you Angelina...this is a wonderful site.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | A check can go thru and still be stoped for about $10 , Ihave done it 2 times.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Hi, Angelia -
You're right, desperation drives us to run after false hope.
When I got my diagnosis, I wanted a magic remedy - but relying on false hope would have left me little room to fight the real fight - to seek and get the best treatment for my particular case and to be comfortable with the decision I made.
There will be bumps in the road - you are still close to surgery, and your recovery may not be as swift as you would like. But your best news - if it came from your doctors - is that you caught it early.
You came to the right place. People here keep it real, and no one pretends to know more than they know. I also found folks here to be the strongest and most supportive group of people on the planet.
Please don't take any herbal supplements without telling your doctors.
Good luck,
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
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