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#95381 05-13-2009 04:38 PM
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Kyn Offline OP
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I scheduled an appointment for tomorrow, but I'm wondering if I should be worried. I just can't figure out what this could be. It's sort of a lump thing way on the back of my tongue. You almost can't see it it's so for back. But it feels like there's something stuck in my throat. I thought it was my tonsil for a while, but I realized that it's actually this bump. I have had weird sores appear around the bump. they look like giant pimples with white heads on them. Never seen anything in my mouth like this. The sores are not ulcers, as I get those fairly often and know what that's like. These are raised bumps. One was the size of a small pea or a little larger than a BB with a big white head on top (like a bump on the bump). Then that one disappeared and now I have a white bump on the other side, but I couldn't get a picture of it because of its location. But it looks like a skin tag except it's all white and very painful. The tissue around the area generally looks... irregular and weird, but the moving around of the sores is very odd. Anyway, looking about online, I can't find anything like it anywhere. It's all fairly localized, at the very back/side of the right side of my tongue. The main bump (the one that feels like something is in my throat) is kind of hard/firm, and tender to touch.

Any insight would be most helpful. Again, I'm going to the doctor tomorrow for sure.

Here are two pictures of the big bump.

[img:center]http://i9.photobucket.com/albums/a63/lilstiney/DSC06490.jpg[/img]

[img:center]http://i9.photobucket.com/albums/a63/lilstiney/DSC06488.jpg[/img]

Kyn #95382 05-13-2009 04:42 PM
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I thought I should add that I'm 28, never smoked, rarely drink (like one drink per year), and that I've had this thing for two weeks. I also recovered from a bacterial infection in my eyes, sinuses, and throat, about a month ago. Had great health for two weeks, then this. I have no "sick" symptoms, just the bump/sores.

Kyn #95388 05-13-2009 06:16 PM
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THat sure looks like aprt of whaty I had on my tongue especially the side of it. JUst take it one day at a time and worry if they say it's cancer, I kn ow it's hard not to worry tho. good luck Kyn and you are in the prayers


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #95394 05-13-2009 06:39 PM
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Definitely get it checked out, but for what it's worth, that looks nothing like the cancerous lesions I've had removed from near that same location on my tongue.


Age 33, NS, HPV-
8/01- At 25, SCC on tongue,3cm lesion remvd. L nk diss clr nodes
10/07- 2cm SCC remvd from L tongue
4/08- SCC on L tonsil,tonslctmy,2 wks later PET showed golf-ball szd tumor in tongue.
PEG.IMRT x 35 Cisplatin x 3 ended 7/08. Peg out feb 09 -Clear PET Dec 2010
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Thanks for the responses, guys. I'll post what the doctor says tomorrow. It's a 6:30 pm PST appointment, ugh.

Kyn #95410 05-13-2009 08:32 PM
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that looks like what i have on my tongue.


smile Dionne smile
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NO ONE can visually Dx OC so it's always a safe bet to get it checked out sooner than later and it pays to be persistent to get a correct Dx.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Welcome to OCF. Any sore in your mouth that has been there at least 2 weeks without healing should be checked by a professional. A biopsy is the only way to tell for sure if its concerous. One thing that should ease your mind is that for some reason most cancerous sores are not painful. Mine didnt hurt at all and I had it in 2 places and then a recurrance,not one of those hurt. Hope it turns out to be nothing. best of luck tomorrow.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Good luck to you. I'm happy to hear that you are going to the doctor tomorrow. I have so many pictures of my tongue just like yours. Isn't it fun to pose for them?..lol


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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Thanks again guys. Visited the doctor today, and she said it looked "concerning". She thought a dentist would have a more qualified opinion for me, and told me to make an appointment right away. Also took a culture and some blood work to check for underlying viruses or health issues. I'll get the blood results tomorrow, and the culture will take longer of course.

She prescribed lidocaine for pain and antibiotics in case it's bacterial. Normally I'm reluctant to take antibiotics, but under the circumstances I think I will. If it starts to clear up at least it will ease my mind while I wait to see the dentist.

Making the appointment first thing tomorrow (it was too late today, 7:30 pm by the time I got home from the appointment).

Kyn #95506 05-14-2009 11:05 PM
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Suzanne, your post made me chuckle. I kept fogging up the lense trying to get the pictures, and my camera was going crazy! =P I took a bunch more, later than these. I think the new ones are a bit more revealing, but not by much. And besides, I'm not sure people want to stare at pictures of the inside of my mouth all day, hehe. =P

Kyn #95509 05-15-2009 03:35 AM
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I just want to let you know a lot of people, even my Drs. have said that most cancerous places are not painful, mine was extremely painful to the point that I could not chew anything solid, so I knew something was wrong. Even though most time they are not, there is a chance it could be. I am thankful I had pain otherwise I would not have caught mine so early. Even though you don't like it know, be thankful there is pain so would know to get it checked out. Good luck and keep us posted.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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Walknlite, I am glad you brought that up specifically. I have pain in mine, and the pain does radiate into my ear and neck when it's bad (like right now). Advil helps with the ear and neck, but the local pain is always there. It's really bad today because the doctor poked it so much yesterday.

I'm wondering--when yours hurt, was it a raw kind of pain, or did it feel like it was hurting from the inside out and more kinda pressure sensitive? Mine is both right now, but I do have a sore there. So the raw pain seems to be the sore, and then the lump itself hurts if you press on it.

Called the dentist today and explained my issue, and they said not to come in but to make an appointment with an oral surgeon instead. They gave me a referral and I have an appointment on Monday morning (I couldn't believe they got me in so fast). Wish me luck, everyone.

Off to fill my lidocaine prescription because my mouth is hurting a lot today.

Kyn #95553 05-15-2009 05:32 PM
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That is exactly how mine was. I had white patches on my tonugue for years and no one seemed bothered by them. So I never thought anything of this. This past Feb. out of the blue I began to have pain when I ate. I looked in my mouth and saw a small lumo under my tongue. It was extremely painful to the touch and was hard. The dentist said that the fact that it was hard and not moving concerned him. He said he had hope because I was in pain, but that I needed a biopsy ASAP. No one else believed him. You make sure you get that biopsy. It was not until I began to have horrible ear pain asked for pain meds for it, did someone think something needed to be done. This thing came out of no where and grew very fast. It was always painful when I had it looked at because there were pressing on it to find out what it was. Everyon told me iyt was just a sore. The orak surgeon I went to said that it looked like a drill fell in my mouth when I was having dental. My dentist would not touch me until I got this thing out. I have not had dental work in over 2 years. I would have remembered a drill falling in my mouth. If this oral surgeon won't do it, do not stop there. Contact an ENT. You and your body knows when something is wrong. Do not let them drag you along. I did not get anything done for two months. By the time my ENT decided to do the surgery, I was only swallowing liquids. MY ear hurt constantly, and my head hurt to swallow. It still does. I am hoping that is because of the surgery and I am still healing, and not that there is still a tumor in there. Yes, you symptoms are exactly like mine were.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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Kyn....one thing to know about oral cancer, you will learn so much as you go. --- Everyone is different! --- Just because someone else has something similar doesnt mean its the same as what you have. Same goes for side effects, we all react differently to meds and procedures.

A dentist wont do a biopsy. You should get an appointment with an ENT or oral surgeon.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 1,412
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Christine is right. Everyone is different, and has different experiences and different symptoms. I have learned that just the few days i have been a member. No two people have the exact same symptoms.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: May 2009
Posts: 10
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Thank you guys. Yeah, when I called the dentist I said, "I want to make an appointment with someone who can do a biopsy because etc. etc." And they said, "Well, she's done biopsies before, but for your thing you should go see this oral surgeon instead." So I see the oral surgeon on Monday morning.

I totally understand what you guys are saying about how everyone's experience is different. I also have epilepsy and have found that to be very true with epilepsy as well, so it's not surprising.

Kyn #95589 05-16-2009 02:42 PM
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Well, I'm a little disconcerted about the fact that the Lidocaine helps the pain in my mouth for a short (a very short) time, but it has no effect on my ear/neck pain. I thought the ear/neck thing was just like a weird nerve reaction of the pain in my mouth, but now I don't know. I thought numbing my mouth would make it all stop, but it doesn't. =( Advil still works, but it's becoming less effective (probably because I've been taking so much of it). It wears off pretty quickly now.

Kyn #95592 05-16-2009 03:07 PM
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Hav your Dr. prescribe you something stronger. I take Darvocet for pain.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Dec 2008
Posts: 1,004
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Mine was VERY PAINFUL!!! It hurt so bad. I take Ultram for my pain and it works great for me.

You took those pictures yourself?!? That is impressive. My dentist took mine:) I can turn my tongue and open wide like a pro.


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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Posts: 10
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Suzanne, it took several tries to get anything in focus. *chuckle* For every decent pic I must have taken four or five horrible ones. It was a challenge!

When I see the oral surgeon on Monday I'll ask if he can prescribe something stronger than advil.

Kyn #95704 05-18-2009 05:57 PM
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I just wanted to let everyone know that the area in my mouth is rapidly shrinking, and I am no longer in pain. The antibiotics must be working on whatever it is.

Thanks for all the info and advice, guys. I feel like I learned a lot here, for future reference as well, and now I know not to take anything in my mouth for granted.

Best of luck with each of your situations, everyone. *hugs*

Kyn #95705 05-18-2009 06:03 PM
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Thanks for updating your improvement. Glad you are feeling better. Hope you dont need us in the future, but if you do we are here. Wishing you continued good health.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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