#95206 05-10-2009 09:03 PM | Joined: Jul 2008 Posts: 101 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jul 2008 Posts: 101 | I came here last year to get advice and support for my father in law, who was diagnosed with stage IV SCC oral tongue. Upon glossectomy nodal involvement was found, and he underwent IMRT and Erbitux treatments. There were some rough periods, but the worst is now over. He has had clean scans for the past 6 or so months and his main annoyance is not enough saliva production. He is doing really well and after four months of living with him and MIL in India I am back in the good old USA with my husband. If it was not for this site, we wouldn't have known about Erbitux. I wouldn't have pressed the doctor to prescribe it ( a necessity in India). I think that alone has saved my FIL from a lot of suffering and problems at a minimum, and I thank the moderators of this forum, the Foundation, and the members who are all here that supported me and continue to support others. I will also be making a humble donation to the OCF very soon. Now that some time has passed and I have had a break from the stress and feel relief that we are "on the other side", I will come back from time to time, and will help in any way I can. Those of you who are suffering need to realize that people are out there who care and need to feel useful: put us to work! Don't do this on your own!!! I'd be most useful to those undergoing treatment in North India, and was happy to be able to help somebody oin India recently. One damn slogan should stay with everyone fighting right now because it is true: cancer is curable. God bless and much love to everyone, Tasha
FIL completed treatment 10/08. CG to father in Law in india who had SCC oral tongue T2N2M0. FIL underwent surgery, neck dissection, IMRT, and erbitux without losing weight or getting nauseated. Completed October 2008. SO far so good.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Tasha, I remember your posts were about your father in law were put on here. Congrats on his progress and to his great daughter in law that went to India to care for him. YTou wre what he needed to see him and encourage him thru this nasty disease. Good luck to yui both and I will be ready your posts in the future God willing.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Great news Tasha and tell your FIL that the recovery process can take 2 years or more so most likely he will see drastic improvements over the way he is today vs 2 years from today.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2008 Posts: 101 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jul 2008 Posts: 101 |
FIL completed treatment 10/08. CG to father in Law in india who had SCC oral tongue T2N2M0. FIL underwent surgery, neck dissection, IMRT, and erbitux without losing weight or getting nauseated. Completed October 2008. SO far so good.
| | | | | Joined: Jul 2008 Posts: 101 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jul 2008 Posts: 101 | Dave you are an angel and I will pass your words on to my FIL.
FIL completed treatment 10/08. CG to father in Law in india who had SCC oral tongue T2N2M0. FIL underwent surgery, neck dissection, IMRT, and erbitux without losing weight or getting nauseated. Completed October 2008. SO far so good.
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