#93807 04-16-2009 07:19 PM | Joined: Aug 2007 Posts: 42 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Aug 2007 Posts: 42 | 5 years ago today Mom began her fight with Oral Cancer. She was diagnosed on April 1st, 2004 which happened to be her oldest granddaughters birthday. Her initial surgery was April 16th, her third daughters birthday. She began radiation treatments on her 6th daughters birthday and ended them on her second granddaughters birthday. Her second surgery was in 2007 on her forth daughters birthday. This year on October 29th, my birthday, mom passed away. We decided to cancel birthdays for the next few years�
I spent the day keeping busy and decided since I am making room for a new baby (our family is FINALLY going to have a boy!) it was time to unpack my suit cases from my mission trip to Africa I took in 2006. In my suitcase I found a CD mom made for me to listen to on my trip. I never listened to it, until today. It is a really random mix of songs theres some journey, james blunt, shakira, billy ray cyrus (!), rascall flatts and then a song I had never heard before. I looked it up it�s a Brad Paisley song. I was reduced to tears. It�s called When I Get Where I�m Going. Mom didn�t even really like country music (except Martina Mcbride and Reba) so I was really surprised. It�s little things like finding this song and other things that make my sisters and I realize that mom really had accepted her fate and was certain she would be in heaven soon. Here are the lyrics. Enjoy!
When I Get Where I'm Going lyrics (feat. Dolly Parton)
When I get where I'm going On the far side of the sky The first thing that I'm gonna do Is spread my wings and fly
I'm gonna land beside a lion And run my fingers through his mane Or I might find out what it's like To ride a drop of rain
[Chorus] Yeah when I get where I'm going There'll be only happy tears I will shed the sins and struggles I have carried all these years And I'll leave my heart wide open I will love and have no fear Yeah when I get where I'm going Don't cry for me down here
I'm gonna walk with my grand daddy And he'll match me step for step And I'll tell him how I missed him Every minute since he left Then I'll hug his neck
[Repeat chorus]
So much pain and so much darkness In this world we stumble through All these questions I can't answer So much work to do
But when I get where I'm going And I see my maker's face I'll stand forever in the light Of his amazing grace Yeah when I get where I'm going There'll be only happy tears Hallelujah I will love and have no fear When I get where I'm going Yeah when I get where I'm going
Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle. | | | | Joined: May 2007 Posts: 104 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2007 Posts: 104 | Amy, I can't tell you how much those lyrics meant to me today. Recently,have been having more sadness over my daughter's death. That song is awesome.....THANK YOU THANK YOU!!!! Your Mom is still touching our lives..... My son also died, 5 yrs before Christa. He had been paralyzed in an accident, and died of a rapid onset pneumonia after 2 1/2 yrs. He had learned to live w/ his paralysis. I have hopes and faith they are all in a better place now. THANKS again for posting that note and the lyrics. Meaningful.... My thoughts are with you. Your Mom was a grrrrreat lady....and did have a deep strength, prolly related to her faith.
Jordan's Mom. Linda She fought the fight with courage, hope and dedication. Ten months of battling tongue cancer. They thought they had it after each treatment. Not to be. Christa died at 32 y/o in Nov. '07.
| | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | Awesome lyrics for us all. And awesome memories of your mom. Thanks.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | Amy- Thanks for posting such a powerful message and for the Dolly lyrics. I never have heard that song but now I'll put it on my ipod. Very inspiring. I'm not that into country music but i have a special place in my heart for for Dolly!  You know your mom was a very brave and strong woman from what i knew of her from posting on here. I didn't know that she had struggled with OC for 5 years. Its amazing how each major milestone happened on a birthday. I hope that one day you will celebrate birthdays again and when you do your Mom will most certainly be there at the partyies with all of her girls. Must be very hard right now though I'd imagine. I believe in heaven and in signs and I think she wanted you to find that cd to give you a happy loving memory of her. Makes me smile. KATE
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Amy, I just have to say how much this post has moved me. I like country music as I do all music except some of the garbage they call music now. Thanks for the post and I do like this song very much.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Amy,
As I have said in recent posts...I miss your Mom so much - she was such a force when I first signed on here after Bill's diagnosis.
Congrats on the upcoming birth of your baby boy...how exciting for a family of girls!
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2007 Posts: 346 | Amy, Thanks so much for sharing this with us. Your Mom meant so much to me that I have a hard time coming back here without her here. I am so happy for your upcoming baby. What a joy your Mother would have had. She is like me, my children are my everything and I will fight to the end to be with them. We will miss her forever as will you too. But memories are just that, no one can take them away. She wanted to create that memory for you.
Thanks for sharing with us. I wish you so much happiness with your new little joy. She is with you always in your heart and memories.
Love, Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO. Had 14 hour operation which included reconstruction of jaw. Reconstruction failed. Some radiation, no chemo. | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 718 | Amy,
Thinking about your mom and reading those lyrics brought tears to my eyes. Thank you for the post. And, congrats on the boy in the family. I am from a family of girls and all of the girls had girls...and, then my husband and I decided after having a girl that we'd break tradition so we adopted a boy. Man are boys different...I think they are harder in their own little curious, no fear, death defying ways. :-) But, they are also a ton of fun!!!
I hope we continue to hear from you. I know it's hard to come back here. When is the boy due?
Margaret ---------- C/G: Husband, 48 (at time of dx) Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3) Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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