#94520 04-28-2009 03:08 PM | Joined: Apr 2009 Posts: 17 Member | OP  Member
Joined: Apr 2009 Posts: 17 | I just introduced myself today and I got the biopsy results also. It's pre cancer, moderate dysplasia with extended margins. I've had this at least 8 mos. Stupid I know. It's gotten worse over the past few weeks, burning,numbness, pain, also increase in size. Could anyone tell me what might happen next as far as treatment? I think I would like to go to Ohio State for treatment since my neice lives there. I've been lurking here for over a week and I think that everyone here is so very brave and informed. Any information would be of help to me now. Thanks | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Jackie, this is the number of one of the better Oncologist in the world at Ohio State. His name is Enver Ozer and here is his office number. 614-293-8074 The 800 # is 800-293-5066.. I called and had an appointment within days , maybe like 3 days?
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2009 Posts: 17 Member | | OP Member
Joined: Apr 2009 Posts: 17 | Thanks I'll call right away. There is a huge family history of cancer in my family, mother,father, brother, lost to it and another sister with barrett's esoph. so I really don't want to mess around with this. jackie | | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Every time I've had that result from a biopsy, they had already cut the lesion out, so no problem until the next time. Also, none of my lesions hurt, they just didn't belong there!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Dysplasia does not always turn to cancer, but it should be followed closely, preferably by a doctor who specializes in OC and can jump right in if things take a ugly turn. An appointment at Ohio State is a wise idea. When you call, make sure to ask what they need in terms of lab or pathology reports, doctors' notes and the slides made from your biopsy so their pathologists can confirm the diagnosis.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Another Ohio connection would be Dr. Maura Gillison at James Cancer Center.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Jackie, I also have barretts esophagus and have had surgery on it too. THey wrapped 1/3 of my stomache around my esophagus to stop thr reflux, but the barretts has to be monitored every 3 months. I hope you get ino see the Drs at Ohio State real soon.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2009 Posts: 17 Member | | OP Member
Joined: Apr 2009 Posts: 17 | I'm so sorry to hear that you have Barrett's also. You sure have been through it! I posted on Introductions today about my Dr. appt coming up. jackie | | |
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