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#94565 04-29-2009 03:51 AM | Joined: Nov 2007 Posts: 13 Member | OP  Member
Joined: Nov 2007 Posts: 13 | Hi all, It's been such a long time since I've been by here - things have been difficult on my part but the best bit from all this is that my Daughter Hayley is doing FANTASTIC. She remains in remission and every appointment goes well. She still isn't happy having the camera check ups...hates the camera going up her nose/down her throat! She is approaching 1 year in remission in August and that's the time she has decided to have a celebration party! She remains so positive - I admire her so much for her attitude. She is one hell of a gal - she just takes everything in her stride. I want to say thank you to all of you who helped, advised, and supported us/her whilst walking this journey. Forever thankful. Mandy 
Mother to Hayley 18, who was diagnosed on the 20th November 2007 with SSC /T4 Throat Cancer. Now in remission as from August 2008. | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have wondered many times how she is doing. She sure is one lil tough gal to be as brave as shw is during all of this. I admire that kid and to me she is an inspiration for any age group, young or older. I sure wish I could attend her party and meet such a tough lil gal. Give her my best and I for one knew she was going to win her war with this trash called OC Have a great day and thank you for letting us know how ghood she is doing.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | Mandy - this is wonderful news! So glad to hear that Hayley is doing well - she was an inspiration to everyone, and it's good to hear the positive news from people.
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | This is wonderful to hear! Thanks for the update!
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
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