| | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Look for posts by sobradley, who was 23 when she was diagnosed, and hayleymcbayley, who was only 18. Both have also written blogs about their experiences -- here's Stephanie's and here's Hayley's.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | CHOCO:
Cervical cancer in the US is not as prevalent as oral cacner.
US Statistics
Cervical cancer is the 8th most common type of cancer in American women. More than 10,000 new patients develop cervical cancer each year, and 3,600 women in the US die from the advanced form of this disease annually.
United Kingdom
Approximately 2,800 women in the UK are diagnosed with cervical cancer each year. As many as 1,100 UK women die from the disease which is the 12th most common cancer for UK women. In 2003, approximately 2300 women were diagnosed with cervical cancer in England alone.
Im pretty sure I read on the main pages of OCF, oral cancer in the US has aprox 34,000 new cases per year.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2009 Posts: 18 Member | | Member
Joined: Jan 2009 Posts: 18 | Hi Lauren:)
My name is Magda right now i'm 25 but I was diagnosed when I was 24(may 2008).My 25'th birth day i spent in hospital because I had radical neck dissection.Right now i am going through chemotherapy because my cancer spread to my lungs.I also tried to find young people like me,who never smoked and they casual drinker:) So it's really nice to meet you:)
Last edited by Magdalena; 04-10-2009 03:00 PM.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Magdalena, Were you ever tested for HPV?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Lauren,I was 27 when I was diagnosed and I am 29 now. I consider myself young:) I felt the same way when I was diagnosed..I felt very alone. When I finally found this site it changed my life. You sure have gone through a lot. I'm happy to hear that you are doing better now. Thank you for sharing your story with us.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jan 2009 Posts: 18 Member | | Member
Joined: Jan 2009 Posts: 18 | yes I was tested for HPV-negative. | | | | | Joined: Dec 2007 Posts: 21 Member | | Member
Joined: Dec 2007 Posts: 21 | laurenkuhly, Wow, you have been thru alot. Do you have many lingering side effects from the Radiation/chemo? I had just turned 25 when I was dx'd in 2001. I was a non-smoker and social drinker. HPV- It was definitely a lonely world back then as the only OC stuff on the web at the time was some very clinical documentation and a few case studies. Would've loved to have OCF as a resource the 1st time around. I know it was unreasonable, but back then I definitely felt akward in waiting rooms...I couldn't help imagining what the much older patients were thinking when they saw me walk into the room with my wristband on.
Age 33, NS, HPV-
8/01- At 25, SCC on tongue,3cm lesion remvd. L nk diss clr nodes
10/07- 2cm SCC remvd from L tongue
4/08- SCC on L tonsil,tonslctmy,2 wks later PET showed golf-ball szd tumor in tongue.
PEG.IMRT x 35 Cisplatin x 3 ended 7/08. Peg out feb 09 -Clear PET Dec 2010
| | | | | Joined: Feb 2009 Posts: 21 Member | | Member
Joined: Feb 2009 Posts: 21 | Hi there, My husband was 28 when he was first diagnosed (small tumor on tongue, it was removed, well diff., clear margins). Classic timing - the tumor was found right before we had our second child - his surgery was the day after the baby was delivered and we were in the hospital together. First recurrence was about a year later in right nodes, 9 of 33 positive, radical neck dissection, cisplatin and radiation followed. One year later (as in - a few months ago) second, recurrence, left neck (6 cm tumor). He had carbo/taxol/ Erbitux and radiation, and then surgery. Margins on surgery were clear and the tumor had shrunk to an amazing 4mm. He just got a peg tube. So here we are - a two and a half year old little boy, a five year old little boy, a three year old battle with cancer, and he is 31, and I am 30. HPV negative, never smoked ANYTHING ever, light drinker (a beer maybe every weekend or less). Welcome to the site, and thanks for sharing your story! I hate knowing other people are going through this stuff, but it is nice to know we aren't alone.
CG to H, Joe, 30 yrs old. 7/06-stage I SCC removed from tongue. 1/08-radical neck rt side, 8 positive nodes, imrt/cisplatin 6 wks. 1/09-6cm pos node on left neck. IMRT and carbo/taxol/erbitux 6 wks, surgery in April. 7/09-recurrence left neck. Erbitux, taxotere, 2nd opinion scheduled at MDA...
| | | | | Joined: Apr 2009 Posts: 4 Member | | Member
Joined: Apr 2009 Posts: 4 | Hey...I am over 30 now (33), but was first diagnosed with Squamous Cell Carcinoma on the left side of my tongue at the age of 21. My cancer they say was caused by my teeth moving...they called it "constant trauma." I have had three glossectomies (they removed a portion of my tongue), a lymphectomy (removed 8 lymph nodes and glands this last time - 2 years ago) and Radiation. Let me know if there is anything that you need or just need to talk. I have had two recurrences and am still here to tell the story. | | | | | Joined: Nov 2008 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2008 Posts: 72 | Lauren, Iam 23 and was diagnosed in November. I was fortunate enought to meet Stephanie on here who is right around my age. The doctors were all very surprised as well with me. You can follow my blog and keep in touch at www.remissionorbust.blogspot.comI don't get on the forums too often here. There are a few links on there to other younder people.
*Shaylynn*
11.25.08 SCC of tongue diagnosed @ age 23 T2N2cM0
12.20.2008 Partial glossectomy & left neck dissection. Clear margins.
6.24.09-Pet Scans show 2 areas of concern
8.5.09-Recurrence-Perotid Gland and swollen node removal
9.29.09 Carboplatin & Taxol x8 Tomo x39
11.19.09 WILL COMPLETE TREATMENTS!
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