#93635 04-13-2009 12:18 PM | Joined: Apr 2009 Posts: 4 Member | OP  Member
Joined: Apr 2009 Posts: 4 | Hey everyone, I am Andrea, a three time survivor of mouth cancer. I am looking to get involved with an organization in which I can work to increase awareness of these types of cancers. | | | | | Joined: Mar 2009 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2009 Posts: 54 | Welcome Andrea. You've come to the right place if you're interested in educating the public about oral cancers. They're always looking for fresh help. I'm new here myself. Brian will see your post and point you in the right direction.
Sweetpea
********
2/09 MEC Rt Submandibular Gland,Tumor Exc,age 68; 4/09 Rt Neck Resect, Excise Rt Lingual Nerve, 10 nodes; 1 month later- Lge Abscess Drained 5/09; 4 more cancers, final path report; 6/09 IMRTx33
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Andrea,
Welcome aboard.
We need all the help we can get.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hello Andrea!
I am the event coordinator for OCF and would love your help in spreading awareness of oc. Who better than a survivor who is living with oc to talk to people about early detection and awareness?
If you would like, we can send you brochures, buttons to pass out to local dental offices, hospitals, cancer centers, etc. If you would like to help and become a volunteer, we have 3 already in your state, we can set you up!
Just send me a pm with your address and phone and we can get you started.
Welcome to OCF, you will find so much support and information here, they are wonderful people.
Look forward to hearing from you!
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Hi, Andrea....I live in Alexandria, and I am one of Susan's volunteers. I haven't done as much as Malka has done in New Orleans. She posts here. Just search for her name. Welcome to the forum. Also, ask Malka when the Tulane support group meets again. It is a new group, and they were trying to meet one Thursday a month. I haven't been able to attend any meetings yet, but I will make it one day. It is nearly 3 1/2 hours for me to drive there, and the same back, of course. I have a son and his family in Mandeville, so I hope to make it to a meeting and then stay with them overnight.
OX--Colleen
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Andrea,
Welcome to our "family." I am out of town and will be back Sun PM. I will try to call you then or Mon. Please email me with your contact info. The Tulane support group is not meeting right now because there is some reorganizing of personnel. We expect to resume in June.
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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