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Mark Offline OP
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A couple new ones in the last few days:

may never reach market (MNRM) vaccine

UBIF (Useless but interesting fact)

SETI (Search for Extra-Terrestrial Intellegence){because we clearly do not have enough here on Earth}

From Danny- NBSD a degree earned by some doctors from the School of No Bull Shi_ laugh

TMWIWTH (tell me what I want to hear)


Mark, 20 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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Posts: 2,676
JAM Offline
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Thanks for making this 65 yr. old computer neophyte's day easier[harder?]. Perhaps you could publish this and make $ for OCF. Still scratching my head. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
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Amy...SSMH? I like that one..... it describes a normal day for me as I try to decipher people's behaviors, doctors comments, and the weird guy that sits on the bus bench each day near my house who writes in the air with his fingers while waiting for buses he never gets on. (Could I be seeing a future me in him?)


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Dec 2003
Posts: 2,606
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Patient Advocate (old timer, 2000 posts)
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WTF???

Now we get free web training for oral cancer survivors?

eek


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
Joined: Dec 2003
Posts: 2,606
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Patient Advocate (old timer, 2000 posts)
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...and what about TPIWWOP?

(This Post Is Worthless WithOut Pictures)

cool


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
Joined: Sep 2005
Posts: 325
Platinum Member (300+ posts)
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Joined: Sep 2005
Posts: 325
Don't forget the ever-faithful WYSIWYG (What you see is what you get)

Andrea


SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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The actual list of abbreviations that Mark put together have disappeared from post number one here. Mark do you have the list to put back up?


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Mar 2003
Posts: 1,377
Mark Offline OP
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Mar 2003
Posts: 1,377
Brian, I have searched 3 out of 4 computers that this might have been on with no luck. The 4th computer has been reduced to only a hard drive which is failing (that is why the computer is no more). I was going to attempt a mass copy of that hard drive to salvage everything on it. I am concerned that it will fail completely and permanently during this copy so I may only get one chance. I haven't found the time to set the copy up.

There is an extensive glossary with abbreviations at the end of the "getting through it" project. Perhaps those PDF pages can be linked seperately here on the forum? I tried to copy and paste them into a post but the pages lost their formatting.

Last edited by Mark; 04-04-2009 06:31 AM. Reason: added info

Mark, 20 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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