#92854 03-30-2009 04:47 PM | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Mar 2009 Posts: 109 | Had my first week of radiations and one chemo. On to week two.
Saw RO for about a second, nutritionist and the nurse. You are doing great! But that's because it's only your first week. By the end of this, mid of next week, you'll start experience difficulties swallowing, be prepared. Sigh. It was nice, even if unrealistic to delude myself for that one week.
But, I am further to the end of treatments than I was a week ago, in the process is moving, which is huge.
I also have very very faint ringing in one ear, no longer than 2-5 seconds, and not particularly bothersome. It could be nothing. Or it could be my first cisplatin's delayed reaction. I'll bring it up to MO when I see him later in the week.
So just checking in. Holding tight.
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
| | | | | Joined: Jul 2007 Posts: 30 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2007 Posts: 30 | I know everyone is different, but I was fine thru the first 3 weeks and then just took each day one at a time, and the 5 days turned into a week and pretty soon I was done! There was a dark tunnel to go through but the light is there, stay focused, many here have been there and we are thinking and praying for you. Bruce
Bruce
Age 57 SCC Stage3 BOT and 1 node PEG 35RADS
7CHEMOS Tx over 9-17-07 tube out 10-12-07 back to work 10-15-07.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Yor ears will ring and probably hurt and maybe it could get hard to swallow, but it's nothing you can't handle.Just think of it as part of the treatment and it will go away later. Good luck and I would bet by readint the few worda you just posted there that you have a positive attitude and are a fighter.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 |
Hi Jenka
Keep up the good work!!!
Please don't forget to mention to your doctor about the faint ringing that you have in one ear - it is very important that he/she is made aware of anything like that as soon as possible.
Good luck
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Please dont forget to mention the ringing in your ears to the doc. It could be a permanent side effect some get from cisplatin. Hearing loss is very common with that type of chemo.
Hang in there, take it day by day and you will get thru this.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Hi Jenka!
Congratulations on getting through your first week. Hopefully it will all go by quickly with only a bit of discomfort. You will feel relieved when it is all over and glad that you threw the book at this.
Keep yourself entertained and sitracted as possible. Hang in there!
KATE
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | As you can tell, it affected my mind too. LOL Musn't forget that.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jenka,
The ringing is probably due to the Cisplatin so definitely tell your MO and let the MO decide. I was told after my 3rd and last Cis that had my MO known, he would have switched me to Carbo which he said and I quote "Carbo is just as good only without the bad side effects". That was 2 1/2 years ago and whether that's true or not is still not proven but I wanted to strangle him at the time. Heck I still do!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | Jenka
Another nag about telling your MO. Cisplatin is VERY toxic to your ears. I found this out after I completed my chemo phase of treatments. I do have ringing in my ears which an ear specialist has given me very low odds of being corrected. My range of hearing is still what is classified as extremely good, however the ringing is very noticeable in quiet environments which can be distracting.
Ask !
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Mar 2009 Posts: 109 | I did mention it. He said it's likely cisplatin. Said to keep an eye on it, and if gets worse after 2nd treatment, we may skip the third.
So far it's getting better, a week and a half after the first chemo.
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
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