#9280 01-24-2007 11:43 AM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2006 Posts: 160 | I am sitting here watching my local Pittsburgh news station, and they actually mentioned oral cancer. The subject was on a study out of Cleveland where they are finding DNA in surrounding cells that may help in a way to diagnose this and other cancers sooner. Maybe you have already heard of this. I am just so excited to actually hear them mention this disease and stress how brutal and devastating it is. We can only hope that they will find ways to save other people from going through what all of us have had to deal with. Just wanted to share.
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#9281 01-24-2007 11:57 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I haven't heard of what you described. Any other info you can pass on?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#9282 01-24-2007 02:06 PM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2006 Posts: 160 | The news station website is www.pittsburghchannel.com. It is under the Healthy 4 you section. Not a big article, but I was so happy just to hear anything about oral cancer on the news. Hope things are good with you David.
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#9283 01-24-2007 02:15 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Hi,
Thanks for the link. Sounds interesting and great to see Oral Cancer in the news.
I sent the link to Sheldon Sax, who keeps the "Oral Cancer in the News" section of this website up to date.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#9284 01-25-2007 11:57 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Linroth,
Thanks for taking the time ti provide the link.
I'm doing great (at least until I read that 50% survival rate) with my taste getting better and my dry mouth improving ever so slightly.
Only got one thing to complain about.....IT'S COLD OUTSIDE!!!! I bet it didn't reach 60 today and it's suppossed to get into the 40's tonight. I HATE COLD WEATHER...that's why I moved to Fl.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#9285 01-25-2007 12:14 PM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2006 Posts: 160 | David, Glad to hear you're doing good. I also have the dry mouth I'm dealing with. As for the 50%, well it's all in how you look at the glass of milk (half empty, half full?). As for me, they can have there stats, we can beat them, and even change them!! As for the weather you're complaining about...it's 15 with a windchill of 0 here in Pa today. And the snow is blowing!!! Have a great day to you and everyone here Jerry, thanks for passing it on. I was just so excited to hear them mention oral cancer on tv! This dreaded disease may some day get the publicity and research that it needs. Take care.
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#9286 01-25-2007 03:09 PM | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2006 Posts: 294 | I haven't heard that 50% figure mentioned by any of my medical provider folks since my battle began last April. Although my Docs would not quote specific stats to me they never gave me any indication of any odds as bad as 50/50.
Bill D.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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#9287 01-25-2007 03:40 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2006 Posts: 378 | Thanks for passing this along, it's an interesting concept. As for the 50% statistic, I'm with Linroth, it's just a number and not us.
David, I'm crying for you - especially since we had snow flurries today and going to have a deep freeze tonight. Do you need us to send you down a sweater? I don't want to think of you shivering down there in that 50 degree weather.
In the past month Jack's dry mouth has really improved. We don't know if it's the 6 month mark post treatment or the acupuncture but he's eating more things that he couldn't swallow before. We're not questioning it.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#9288 01-25-2007 05:16 PM | Joined: Feb 2004 Posts: 218 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Feb 2004 Posts: 218 | Hi, You can read the article mentioned above at http://www.oralcancerfoundation.org/news/story.asp?newsId=1607 Thanks to Jerry for passing this along. - Sheldon
Dx 1/29/04, SCC, T2N0M0 Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions) Dx 3/15/2016, SCC, pT1NX Tx 3/29/16 Surgery
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#9289 01-26-2007 12:58 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | JoAnne,
Thanks for the sweater offer but I do own 1 or 2. I had to use the blue one yesterday and the black one today but it warmed up to the high 60's this afternoon.
Whew !! I was packing to move to Key West but I guess I'll tough it out a little longer. We should only have to deal with this a few more weeks before our "Spring" arrives. LOL
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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