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EzJim #92519 03-25-2009 07:54 AM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I posted this mornings visit with my Oncologist in general. I wasn't thinking straight yet, just digesting the Drs words.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #92539 03-25-2009 11:15 AM
Joined: Feb 2007
Posts: 790
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Feb 2007
Posts: 790
Yes Jim--- its lots to take in. I hope that everything coems back negative nad this is just post surgical effects.

Thinking of you.

KATE


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
misskate #92545 03-25-2009 11:50 AM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
The Dr not only felt it on my tongue, but could see it as well. I shall beat it yet again.If it's there, so am I.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #92616 03-26-2009 07:21 AM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Posted PSA results in general


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #92695 03-27-2009 09:53 AM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I am on my way soon to pick up Fentanyl patches. I just can't take this pain anymore. I have to go to the Wheeling Hospital to his office to get them. I was told to name the pain meds I want, but geez, I told them I have percocets. He wants me to go for these. I still have 1 patch from the implants LOL I hope they do more this time than last. I was given the warning about constipation and I had better stock up on stool softners. Got those too. Wish I had BarbT here to drive.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #92705 03-27-2009 01:18 PM
Joined: Sep 2008
Posts: 489
Platinum Member (300+ posts)
Platinum Member (300+ posts)

Joined: Sep 2008
Posts: 489
If I could I'd drive you Jim.

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Good1 #92707 03-27-2009 01:23 PM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
In the car or bananas? LOL J/K you can be my designated driver


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #92736 03-28-2009 08:59 AM
Joined: Feb 2007
Posts: 790
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Feb 2007
Posts: 790
The Fentynl patches did WONDERS for me Jim. I could actually function pretty normally instead of being in constant pain and then taking a pain pill and being kind of sleepy and all wacked out from the side effects of percocet/ vicodin etc.
It takes a day or two to have it get into your system.


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
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