Hi,

It's been one month since Richard's last treatment. He is doing great with eating and normal activities. We are back to our 2 mile walks. He is also resting a lot and trying to pace himself. The one problem that is still painful are two mouth sores, one on the side of the tongue and one at the back and under. As you all know, every time he eats and talks they are irritated. He is very determined to eat and in the morning the pain is minimal, but by evening it's worse.

The MO said that they would get better as time goes on and they have. We saw the dentist yesterday and he said they looked like canker sores. He gave Richard samples of a product called Peroxyl by Colgate. The label says inactive ingredients ethyl alcohol 6%v/v. I know we are supposed to stay away from alcohol, but is this harmful to use a few times? I read the info on the forum about using peroxide with saltwater, but this product is in a packet and would be so easy to use. Does the peroxide burn? If it wasn't for these two left-over sores, Richard could wean off the Peg tube. The mucous is almost gone and the dry mouth is kicking in. His mouth and throat are still a bit sore, but bearable. We also think that dropping from 50 to 25 for the pain patch made the discomfort more pronounced. The Biotine products are working to help with the discomfort.

We are so thankful for his progress and take one day at a time. We are very lucky and hopefully in time the mouth issues will improve. Thanks ahead of time for any feedback. Geri

Here are some ideas I've received for mouth sores. You may already know these.
1. Hydrogen Peroxide and water gargle. Do not sting.
2. Salt water
3. Milk of Magnesia. Not sure how to use, but I think you rub it on the sore spots.

Sandy

Hi Geri

Has your husband tried using the combo of water, baking soda, and salt? I used to rinse my mouth several times per day with that. I also was given a prescription mouth rinse called Peridex. Its a hydrogen peroxide rinse and it does burn a little, some kind of mint flavoring in it burns. I water it down to 1/2 water and 1/2 Peridex.

Glad to hear your husband is recovering so nicely.

I personally would think products with peroxide were too harsh and anything with ethyl alcohol a most definate no.Salt water and baking soda worked wonders for Rob and he also had a liquid called mucaine suspension that was thick and milky looking and was hand made by the pharmacist.I believe one of the active ingredients was a local anaesthetic which certainly numbed the pain.Have the sores been swabbed for possible infection Geri?

love liz