#9182 01-11-2007 03:00 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi all,
Why am I not surprised to find Brian and the OCF in print again.
I just received the January issue of "Inside Dentistry", a widely distributed dental magazine. There are 3 wonderful articles in it, and Brian and or the OCF are in all three.
I had known about this coming issue since last September when I was contacted by one of the writers to see if I could help her out. After some lengthy discussions and emails, I referred her to the OCF website and and gave her the email addresses for two OCF members that had lost loved ones to oral cancer. As a result of this, she put together a great article about the OCF, Brian and Rosie Michael. For those that don't know Rosie, her daughter Heather fought and lost, a long and courageous battle with oral cancer.
The writer did a wonderful job detailing Brian's fight and successes and gave a heart rendering synopsis of Heather's battle.
I am hoping that these 3 articles will go a long way in helping to get the word out to my colleagues about the importance of early detection.
I hope that there is some way that Brian can get these articles to Sheldon so that they can be placed in the Oral Cancer In The News section of the website to be read by all.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#9183 01-12-2007 12:38 AM | Joined: Oct 2006 Posts: 46 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2006 Posts: 46 | Jerry,
Is there an on-line link to these articles?
Just a thought..
Loretta
C/G to husband SCC of right tonsil, Dx 5/02. Tx concurrent rad with Taxol and Cisplatin. Consolidation therapy Cisplatin and 5-FU. Recurrence 9/06, neck dissection 10/06. Tx with twice daily radiation; two in-patient infusions of Cisplatin.
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#9184 01-12-2007 12:50 PM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | I haven't seen these yet, but I am pretty sure that they will not be in any electronic form. Jerry if you could fax me copies of them, we could get them typed and into the OCF news site. Or we could ask the publisher to send some copies to OCF and I could get it from there, and type it up. Jerry would you mind making the call since I don't have the numbers?
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#9185 01-12-2007 02:28 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Brian
Since the magazine is gigantic, at 10.5" x 13.5", I think it's best that I call for a copy to be sent to you. There is a number to call for addtional copies right in the magazine. I will take care of it first thing Monday morning.
BTW I sent off an email to Brittney, the writer and she hadn't even seen the article in print yet. I told how great it was ( as well as the other 2 articles) and she was thrilled to hear from me.
I plan to contact the editor by email, too and thank him for the great service that they have provided for all of us. I hope and pray that it has some impact on those that read it.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#9186 01-13-2007 12:08 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | I am so glad they used Rosie Mitchell and Heather for the story. How different Heather's fate might have been if she had been diagnosed earlier. She was the first person I thought of when the writer posted looking for the story. She just didn't fit the profile, 29 and a non-smoker. So sad. I am looking forward to reading this article. Any chance of CURE magazine picking it up?
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#9187 01-13-2007 01:30 PM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | Once it has been published in one place, it isn't going to get picked up again by another publication, magazines don't work that way. We will have to wrtie something new if we want to submit it to Cure. Jerry - thanks for following up on this I don't have the numbers.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#9188 01-15-2007 01:51 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Brian,
The magazine is on it's way. Took care of it first thing this morning.
I would like to get a copy to Rosie, if she would want one, but I have no idea what her address is.
If anyone knows it, please let me know. I sent her an email last week, but have not gotten a response.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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