#91125 03-04-2009 01:18 PM | Joined: Feb 2009 Posts: 7 Member | | Member
Joined: Feb 2009 Posts: 7 | We are seeing our oncology surgeon, reconstruction surgeon and oncologist in next two weeks to start with Dad's surgery. The road ahead is scary and long but I thank you for the forum, your time and support.
Only daughter to 65 y.o non smker Dad with 3.2 cm Rt lower alveolar rim SCC with 4 level 1 lymph nodes, T4N2bM0- IVb. Had right mandibulectomy and neck dissection with fibular flap reconstruction 3/2009. Recieving IMRT, planned 34 Tx and Cisplatin 3 cycles since mid May 2009.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Good luck to you and your Dad and I am sure the team will make things better for your Dad which will mke them better for you.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2009 Posts: 23 Member | | Member
Joined: Mar 2009 Posts: 23 | Anu1 am thinking of you....this website is the place to get the information. My mom started the long road in december....15 treatments done 15 to go.... | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | IG,
Are you sure she's only going to get 30 rads? The "normal" is 7 weeks or 35 Tx's.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Oct 2008 Posts: 10 Member | | Member
Joined: Oct 2008 Posts: 10 | David,
I only had 30 radiation treatments. I had surgery and also had chemotherapy once a week for 5 weeks.
Partial Glossectomy 12/06, stage 1 SCC, right side
11/07,stage III SCC in right side of neck 12/07, Modified neck dissection,48 lymph nodes removed,neg. 1/14/08 startedChemo-cisplatin once a week for 5 weeks, Radiation everyday for 5 weeks.Finished treatment 2/15/08. Cancer returned,sugery 4/5/10.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Not saying it's never been done, that it's just not the norm. That's why I was questioning it.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2009 Posts: 7 Member | | Member
Joined: Feb 2009 Posts: 7 | Hey all. Thanks for the support. Meeting with the surgeons went well. Surgery- Right partial mandibulectomy with fibula free flap reconstruction and right neck dissection scheduled 3/27. I hope 1 month delay in surgery from time of diagnosis is not too much. Take care.
Only daughter to 65 y.o non smker Dad with 3.2 cm Rt lower alveolar rim SCC with 4 level 1 lymph nodes, T4N2bM0- IVb. Had right mandibulectomy and neck dissection with fibular flap reconstruction 3/2009. Recieving IMRT, planned 34 Tx and Cisplatin 3 cycles since mid May 2009.
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