| Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Nancy, This was written over a year ago so the link may not work. Try Carnation Instant Breakfast VHC. It has 560 nutritional balanced calories in a 8 oz can and will cut the misery and the time in feedings. You order it thru your pharmacy dept and some have suggested that if you get a prescription for it, your insurance company will pick up the tab. I only pay about $32.00 per 24 can case at Walgreens. That's only $5.00 a day for 2000 calories. Click on this link: http://www.nestle-nutrition.com/family.aspx?objectID=86E49EB3-BE25-4B16-81D7-235E6F6E5183 Under the PURCHASE PRODUCTS tab, select FIND A PHARMACY NEAR YOU. Under the PRODUCT NAME pull down, select Carnation Instant Breakfast Lactose Free VHC and fill in your zip code and they will give you a list of pharmacies that carries it. At the top of that list note the Product Code and NDC Number in case that helps you when you call the store. When I call Walgreens it only takes a day or 2 at the most to get it delivered to the store and they call me when it's in. You can also order it online but it usually costs more and takes much longer to get. No, I do not work for the company nor do I get a commission (I wish) but this product made my feeding life during and post treatment much much easier and I am sure it will do the same for you.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Aug 2008 Posts: 238 | Thank you so much for the tip. My Mom has lost around 80 lbs. over the course of her three recurrences. This time they've found it in a lymph node on her neck. She doesn't have another 80 to spare so hopefully this will come in handy! Thanks again and take care. Keep up that bike riding :o)
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11. | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Aug 2008 Posts: 238 | P.S. - the link still works! Thanks - Nancy T
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11. | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I was told when I 1st started drinking it, thT PHARMACIES HAVE TO ORDER IT. they don't keep it in stock. Rite aid ordered for me and the Pharmacist is a friend of mine so he gave me a discount. He knocked it down to $27. That's a good discount.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Aug 2008 Posts: 238 | I feel kind of dumb asking this question but here goes. When my Mom has her surgery they are going to remove a lump on the right side of her neck (right under the jaw bone) where they say the cancer is in a lymph node. That's what the dr. has told her. I keep seeing neck dissection come up in the postings. Is that the same thing as when they remove the lump from her neck or is that something different? Thanks.
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11. | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Neck Dissections can be totally intrusive (Radical) where they can take most or all nodes in one side plus muscles, nerves and blood vessels or minimally invasive (Partial) where they just take the nodes known to have cancer. They can be on one side only or done to both sides (Bilateral).
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Aug 2008 Posts: 238 | Thank you for the explanation. I appreciate it. Hope you are doing well.
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11. | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | A neck dissection means making an incision under the ear and cutting a line (usually along the neck crease).if it is one side the cut will extend to the midline of the throat,if it is both side (bilateral)it will go from ear to ear .it can be radical or modified ,and will involve removal of the tumour and surrounding lymph nodes.In a radical the jugular vein and possibly some muscles will be removed along with as many lymph nodes as they deem necessary to stop the cancer spreading.this will be decided when they see if the tumour is confined to the capsule of the involved lymph gland.the wound is often closed with staples but may be stiched,and a drain will be inserted in the suture line for a couple of days.if all goes well hospital stay usually last 48-72 hours after surgery and when the drain is removed she should be discharged home.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 66 |
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Mar 2009 Posts: 23 Member | Member Joined: Mar 2009 Posts: 23 | My mom has really had no side effects from her neck dissection....just getting thru this radiation will be the trick!! Any ideas on what she can sip on? She had trouble after surgery with her feeding tube so is very hesitant about doing that again!! THANKS | | |
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