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#91526 03-10-2009 07:29 AM
Joined: Mar 2009
Posts: 48
jrch26 Offline OP
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Posts: 48
I know that everyone is different. I also know that everyone handles their treatment differently.

My mom had her first dose of Erbitux yesterday. She didnt have the allergic reaction that they worried about, however, she was vomiting, had a low grade fever and a sever headache.

I am just curious about the side effects and if they continued with each dose.

Thanks in advance!



26
Mom 48 diagnosed Sep 08 Stage IV SCC
full glossectomy, neck dissection traech and peg Nov 08
35 radiation treatments and 3 chemo
Mar 09 mets to lungs
Started Erbitux 3/09/09
06/26/09 mets to rib
Stopped Erbitux 6/26/09
Start erbitux/taxol 7/06/09
Started Hospice 7/24/09
Passed away 8/09/09
jrch26 #91535 03-10-2009 11:10 AM
Joined: Feb 2009
Posts: 21
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Posts: 21
Hi there! My husband got super constipated after his first Erbitux, but nothing more than that. He's had 5 now, and his skin is a wreck! That is really his only big complaint. It took about 2 full weeks for the rash to show up. Head and Shoulders helps him the most, I think more than the antibiotics or cream they gave him. He doesn't seem to get so constipated each week, either. Really was bad that first week. If she is prone to headaches, this is just something to be aware of - they have a new anti-nausea patch, with the drug Kytrol in it. They gave it to my husband and the headaches that came with that were really bad. It seems to be fairly new, but I just wanted to give you a heads up in case they offer it. Make sure they know she is throwing up, since they can give her Emend or something for that.


CG to H, Joe, 30 yrs old. 7/06-stage I SCC removed from tongue. 1/08-radical neck rt side, 8 positive nodes, imrt/cisplatin 6 wks. 1/09-6cm pos node on left neck. IMRT and carbo/taxol/erbitux 6 wks, surgery in April. 7/09-recurrence left neck. Erbitux, taxotere, 2nd opinion scheduled at MDA...
Angie P #91536 03-10-2009 11:17 AM
Joined: Mar 2009
Posts: 48
jrch26 Offline OP
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Thanks angie. We called the doctor and they said that they were mildly concerned about her side effects. She is on zofran for nausea which seems to help. The only problem was that she didnt have any because they never mentioned the nausea side effect. She seems to be a bit better today. Hopefully it was just the initial dose!


26
Mom 48 diagnosed Sep 08 Stage IV SCC
full glossectomy, neck dissection traech and peg Nov 08
35 radiation treatments and 3 chemo
Mar 09 mets to lungs
Started Erbitux 3/09/09
06/26/09 mets to rib
Stopped Erbitux 6/26/09
Start erbitux/taxol 7/06/09
Started Hospice 7/24/09
Passed away 8/09/09
jrch26 #91542 03-10-2009 11:44 AM
Joined: Jun 2007
Posts: 5,260
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Posts: 5,260
I had Erbitux but no side effects and it was with Radiation treatments. I bet I would be talking to a Dr about the headaches and constipation. He might have something to help.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here

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