#9127 01-02-2007 11:55 AM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | After 2 months of trying to find where we could buy Carnation Instant Breakfast VHC,[we live in the Arkansas Ozarks] I finally talked to a Home Health Care company in Little Rock, Ar. today. Here is what I learned. CIB VHC is NOT recommended for tube feeding because it is too dense and may clog the tube.It is for people who can swallow. However, Nestle makes a product called Nutren 2.o that has 500 calories per can and is made specifically for tube feeding. We are going to order a case and try it. {John is presently on 2CAL-HN @ 450 cal. per can] If he tolerates this, he will pick up an extra 200 cals per day. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#9128 01-02-2007 12:20 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Amy,
I had the tube through the nose thing for 10 days and I never had a problem with Carnation VHC. I don't know if the nose tube is comparable to the Peg because I've never had one or even seen one.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#9129 01-02-2007 12:48 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | My guess is that it must be different. The Intral person I discussed this with told me that the VHC was too dense to go through a peg and would cause problems. She also said we should NOT thin it with water-don't know why, but their nutritionist is supposed to call me tomorrow. There is so much info AND mis-info out there, it takes alot of trial and error in my experience. I will post what I find out tomorrow. But extra calories would be great for us, so we are following through. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#9130 01-02-2007 01:04 PM | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2006 Posts: 209 | Hi Amy, Mike was on a Nestle Nutran product as well. His was called Pro Balance. It was only 300 calories a can. His tube has been out a while now, and he still drinks a can or two a day. Along with eating a normal diet. It tastes ok. A nutrionist precribed it from the dozens of formulations Nestle offers. The point I would like to make is our insurance covered this product while he had the feeding tube. I got the impression from some posts that people were buying it out of pocket. Insurance also paid for all the dressing and tape required for maintanence on both the feeding tube and picc line. We went through a home health company that is national, called Apria. They did the billing to insurance too. Perhaps some insurance companies do not pay, but it is worth a try! I hope the new product works well for John. Ginny (Mike's wife)
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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#9131 01-02-2007 02:09 PM | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2006 Posts: 209 | Hi David, The nasal feeding tube passes through the nose, down the throat and esophagus then on to the stomach. The Peg tube is inserted into the stomach through the outside of the stomach wall. They can be short and flush against the stomach or long or really long like that garden hose Mike had. I am surprised that you got a Nasal tube. You might have liked the Peg. The Peg is concealed when you are out in public. The nasal one runs through the area you got radiated.
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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#9132 01-02-2007 02:20 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | I don't want to get in peg this war again but if you are only going to need a tube for a few days or weeks, the nasal tube is much less invasive. Ugly yes, but it works. I found Ensure Plus worked perfectly fine with the nasal tube I had after surgery in 2001. I also think Ensure Plus which is 360 calories works through the PEG.
Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#9133 01-02-2007 02:23 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2006 Posts: 378 | Hi Amy, They could be right. Jack was on the neutron 1.5 with his PEG tube and at times he was on the 2.0 formula. He is now using the Carnation VHC by mouth so we have both. He poured out a can of the VHC to compare it to the neutron and it's definitely thicker. It will be interesting to see what the nutritionist says. Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#9134 01-02-2007 02:43 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Small world, Ginny- the people I talked to today were Apria in LIttle Rock, Ar.! Interesting that your Ins. will cover the ancillary supplies, tape, dressings for the tube-our won't. But we think they will cover the Neutron because they cover the 2Cal. We'll see. Getting 2000 cals. a day through a peg is really a challange when you have no appitite and your stomach has shrunk. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#9135 01-02-2007 05:43 PM | Joined: Aug 2006 Posts: 15 Member | Member Joined: Aug 2006 Posts: 15 | JAM, I live in Texarkana,ARkansas. I was on PEG tube about 6 weeks, I have two cases of 2-CAL left, if u want it send me your mailing address and I will send it to you. Sandra | | |
#9136 01-03-2007 05:27 PM | Joined: Mar 2005 Posts: 58 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2005 Posts: 58 | Amy, I had a peg for ten months and used Carnation Instant Breakfast and had no problems. Afterwards I followed with about 4 oz. of water. I am curious that you live in Arkansas and in the Ozarks. Last year I purchased a home in Berryville and my husband and I spend time there as well as Arizona. Send me a e-mail and maybe we can meet?
Hacklene
Hacklene
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