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Joined: Sep 2008
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Good1 Offline OP
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Cecelia the crepes sound wonderful. I did not know that they did not produce syrup in the UK.

My little blue spruce is only about 3 years old so I gave him some mulch. Two years ago when I bought the house he was looking a littly puny, but with lots of TLC he is now looking good.

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Joined: Jun 2007
Posts: 5,260
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I have planted trees off and on for ---- years LOL and never had one pass away yet. I ordered some 2 red maple trees for the hiuse my ex has now, and plated them in the front yard . One started to die or so I thought and just let it go to see the results of my treatment. That tree is half red and the other half is dark green. U have to go trim it for her one of theses days. It's just about out of hand from being ignored, That is a one of kinder being 2 toned and all.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: Jun 2007
Posts: 5,260
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Man I know I hurt but not as bad as I am typing and hurting words. LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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2 others I tried today.. they are good together.. I took some frozen crinkle cut sweet poataoes out of the freezer.. got out my egg poacher and made dinner...Watch when you French Fry the sweet poataoes, as soon as they begine to float, get them out of the oil. Put them on you plate and then when your egg is poached, put it on top of the potatoes. mash them together with you fork and go for it. I had to do it 2 times because mashing them made is easy to finish off with this sore tongue.. Christine and Good1 will like this I bet


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: Jun 2007
Posts: 10,506
Likes: 2
Administrator, Director of Patient Support Services
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Great news, the menu is expanding smile

Sounds like something Im gonna try. I ususally just mash the sweet potatoes and mix them with my regular mashed potatoes. Red skins have the smoothest texture.

I made glazed carrots yesterday. Peel, chop up very small and boil for about 15 minutes about 3 fresh carrots. Then sautee them with butter and brown sugar for a few minutes. It tasted so good just to have a different food.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Sep 2008
Posts: 489
Good1 Offline OP
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Posts: 489
I have not tried a poached egg yet. Since the PT is loosening up my neck and I no longer feel like someone is choking me I can swallow better. Now I hope to start trying foods again. It has been very difficult to swallow and I have been staying with liquids to avoid the pain.

I'm having two friends visit next weekend and while they are here I thought that we would try one of the no chew foods from the cook book. Once my confidence improves it will be easier for me to eat more. Right now I'm just plain scared.

Darn OC - used to be that nothing scared me.

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 5,260
I been swallowing the soft foods , but you know what? I am scared everytime i put something in my mouth. Just a few minutes ago I had a cake donut that I warmed up to make it softer and then would take some water to help it go down. Damned if I didn't get it stuck anyway and now have donut and water on my shirt. LOL Bib time for me.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Joined: Sep 2008
Posts: 489
Good1 Offline OP
Platinum Member (300+ posts)
OP Offline
Platinum Member (300+ posts)

Joined: Sep 2008
Posts: 489
With my flap I just have to mash everything up to the consistency that it would be if I had already chewed it. And I have to take small bites. Then wash it down with a thicker liquid than water. The therapist said that she was comfortable with me using a nectar consistency. I'll get brave again once I don't hurt so much. Lately it has been hard to just do the day to day things without adding any thing extra to it.

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
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