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Yep!!! I bet we would fit in:)


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Joined: Jun 2007
Posts: 595
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Jim, Sugaring season is in full swing here in Vermont, if you want some REAL Maple Syrup let me know and I will see what I can do for you!! Semper-Fi Bob


Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
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Hey Jim.... Did you try that Smuckers Blueberry syrup yet? I think by next week I will be up to pancakes again so Im looking forward to it. Let me know how the real maple syrup is. What is the grocery store chain out your way?


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Sep 2008
Posts: 489
Good1 Offline OP
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Posts: 489
[quote=EzJim] When are they going to dialate your throat? It never seems to hurt when they do it. Good luck and if you need a cook, I can be bribed. LOL[/quote]

I have to go see the ENT so that we can schedule my "opening". I am glad to hear that it does not hurt - everything else has. I got the results when I went to see the dietitian. I love these integrated computer systems!! LOL

I would love to have a cook. My biggest problem is wanting to get in the kitchen and cook something. I bought two no chew cook books in the hope that it will spark some interest for me. You are just next door come on over. LOL

I also have a very big oval dining table with two leaves so we can have Suzanne and the wloe gang over for dinner and pain meds. ROFLOMAO

Patty

Last edited by Good1; 03-15-2009 04:29 PM. Reason: added something i thought was funny

48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
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Patty..I can't wait!!! I'll bring the lobster bisque!! That goes down really good:) I'll also bring the Ultram, Percocet, Vicodin and of course....the Senekot!!!


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Joined: Mar 2008
Posts: 3,082
Suzanne
Is that the menu for your wedding reception?
Seriously, best wishes on your big day - We had our reception at a now defunct Nepalese resturant in DC, the Katmandu and I was curious what my meat and potatoes relatives would think of an exotic cuisine. No worries: my favorite uncle came up afterwards and said it was the best Chinese food he ever had wink


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Posts: 5,260
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Christine I did get to try thr blueberry. From what I could tase, it's very delicious,


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Glad you liked it at least the first bite or two. What grocery store chain is out your way? Different areas have different stores.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Dec 2008
Posts: 1,004
Patient Advocate (1000+ posts)
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Posts: 1,004
lol...yes we are having a buffet of different meds. Don't you think that will go over good? And...we're having an open bar, it should be interesting!! I'm really looking forward to my wedding...thank you Charm:)

xoxo


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Joined: Jun 2007
Posts: 10,506
Likes: 2
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Hey Jim:

Im back to eating pancakes and boy are they good!!!! The blueberry syrup is very tasty. I did buy some real Canadian maple syrup. You are right, its very expensive $5 for a small 8 oz bottle and that was the regular store brand. It was $15 for a larger bottle. You only need a tiny bit of the real maple syrup and it tastes so much better than the other kind. I mix the real stuff with the blueberry and its so good. Best part of the real syrup is that it does not burn my mouth not one bit. You gotta try it!!!!!

My store doesnt carry those other fancy kinds of syrup like you get. What store do you shop at?


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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