| | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) |  "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Jeff i got sucked into reading about these morons who are actually having their tongues cut in half and left to heal in two pieces.How perverted is that?I am deeply traumatised!!!
David i am glad it is just and infection.Thrush is pain in the arse,but i think it responds quite quickly to treatment.
take care
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | OP Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Well I can't ski (snow type) here ever so tell Dan we're even.
My "split" has now grown to something like the Grand Canyon. It's now almost from the tip of my tongue back at least an inch or so. It's not that painful but the white stuff is but I did start on the Diflucan last night and I'm eating my yogurt so we'll see. I am just amazed how quickly things can go from "normal" to unpleasant. I guess we just don't have much in the way of tolerances post Tx.
I think our "2 week" rule should only apply to people that have not had our cancer. As for the rest of us I agree with Patty. We need to get it looked at ASAP.
One thing I learned quickly last night is eating a fresh orange with a sensitive split tongue with Thrush don't go together. Ouch that stung. I would eat a bit and then dip my tongue in cold water and then eat some more. Think I'll pass on my orange for a few days.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | David, I'm sure you will learn promptly that a lot of fruits have acid in them. Bananas, Oranges & their cousin grapefruits, Apples plus a couple more and most of the fruit and veggie juices. Good luck with that tongue today.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Sounds unpleasant, I hope it heals quickly David. I don't think Dan's ever got that uncomfortable. During treatment he got thrush regularly and that was terrible.
Not sure what Dan's current his tongue issue is...will be sure to get it checked out next time it occurs. But, it sounds much less severe than what you are dealing with.
I think it's all that warm weather you have to contend with. :-)
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | David,
Sorry to hear of your split tongue woes. I have seen pics of youngsters in the Air Force who had this done (against appearnce regulation), looked pretty gross. I hope you start healing soon. Must be tough to talk and eat soup ;-)
Keep us posted, you know you are my barometer.
Tim
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | I have never heard of a split tongue happening except in old proverbs ...whiteman speaks with forked tongue..
Although as a child I split my tongue riding a skateboard and it hurt like heck!!! Guess I learned a valuable lesson that day...don't talk and ride...But it was milk shakes, ice cream popsicles, and pudding for a while...
Hope you are feeling better Dave
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sorry to hear you have thrush. It can hurt like heck and come on so fast. I felt dry mouth and a tingle and within 2 hours my whole mouth was covered with it. The meds ususally clear it up quickly. Hope you feel better soon.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | [quote=Cookey]Jeff i got sucked into reading about these morons who are actually having their tongues cut in half and left to heal in two pieces.How perverted is that? [/quote]
Liz
I wish that there was a way that some of us could have their (sterilized of course) tongues and they could have our flaps instead if they want to do this. The dumbies.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Its just about the sickest thing i have ever seen Patty,what the hell goes through the mind of a moron who goes and asks someone to cut their tongue in half?
David have they given you nystatin?
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | OP Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | OK, perhaps I have mislead you all. My tongue is not like split into a snake tongue but visualize if you would flying over the Grand Canyon from 30,000 feet and looking down you would see flat land (my tongue) surrounding a deep trench (what I call my split) running through the middle.
Good news, after 2 doses of the Diflucan and 2 cups of the active yogurt it already feels better so lets hope that's the end of it. Still wonder why or what I may have done to encourage it's growth but I'm glad it's reacting so quickly to the meds.
What's the nystatin for?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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