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Joined: Sep 2006
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trt Offline OP
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I keep getting sick for months at a time in winter. 3 monhts last year. 2 and ongoing this year. It seems that any light physical exertion will make me sick and the illnesses last for ever.

Has anyone found a solution. Someone mentioned germanium, has anyone tried it.



Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
Joined: May 2007
Posts: 666
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germanium..
I would not consider it.

There were some NCI sponsored trials in the 80s with organic germanium compound.
These compounds were used as potential neoplastic activity. They are toxic.

-> bad idea should you be able to get a hold of them.

There is also germanium mineral water... which will (so they claim) help with:

Healthy airways and breathing*
Mental health*
Healthy cellular replication (of the breast, lung, larynx, and bladder)*
Liver health*
Healthy and normal blood pressure*
Healthy uterus*
Healthy sinuses*
Healthy brain tissue*
Healthy blood glucose levels*
Cardiovascular health*

It probably is also useful to clean your car......

(waste of money)

Markus

Last edited by Markus; 02-22-2009 05:40 PM. Reason: too subtle...

Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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TRT,

The first year after my treatment I kept isolated as much as possible. I knew that the chemo damage would take time to rebuild. The only place I went was to my appointments.

I took vitamin, high protein diet, lots of liquids. Keeping up with your Dr. appointment and all blood tests. You can ask for a Blood work up if you think something is out of order.

Hope this was of some help.

Take care.. Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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trt Offline OP
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nothing wrong with the blood. Oncologist thinks I am "weak" whatever that means and is annoyed with me for coming in as opposed to seeing an internist. They'll typically say it's viral and there is nothing to do. I did not have chemo.

Maybe it's my daughter who brings all kind of stuff from preschool. It'd be difficult to keep away from her.

I do take vitamins b and c and some herbal products, sometimes chinese herbs.


Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
Joined: May 2002
Posts: 2,152
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You might try adding Zinc and a multi vitamin to what you are already taking. Zinc is one of the ones they put me on after radiation. It was supposed to improve healing and taste.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Posts: 666
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In addition to a decent multivitamin preparation you can also consider vitamin D, unless you spend lots of time outside.
Strangely enough, zinc tablets make me gag.

Re herbal stuff....some of that stuff was extracted with and still is in ethanol. Something to consider.

The vitamin D story is particularly interesting.
This is one of the few things that I take.

http://www.nih.gov/news/health/aug2008/ods-12.htm
http://ods.od.nih.gov/factsheets/vitamind.asp

Last edited by Markus; 02-23-2009 12:23 PM.

Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Joined: Sep 2006
Posts: 149
trt Offline OP
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Posts: 149
I don't spend a lot of time outside but it is los angeles.


Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
Joined: Sep 2006
Posts: 149
trt Offline OP
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Joined: Sep 2006
Posts: 149
have you researched this recently. I heard some new studies mentioned but have not really verified.

[quote=Markus]germanium..
I would not consider it.

There were some NCI sponsored trials in the 80s with organic germanium compound.
These compounds were used as potential neoplastic activity. They are toxic.

-> bad idea should you be able to get a hold of them.

There is also germanium mineral water... which will (so they claim) help with:

Healthy airways and breathing*
Mental health*
Healthy cellular replication (of the breast, lung, larynx, and bladder)*
Liver health*
Healthy and normal blood pressure*
Healthy uterus*
Healthy sinuses*
Healthy brain tissue*
Healthy blood glucose levels*
Cardiovascular health*

It probably is also useful to clean your car......

(waste of money)

Markus [/quote]


Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
Joined: May 2007
Posts: 666
"Above & Beyond" Member (500+ posts)
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Posts: 666
Anything that claims to be effective on so many levels should be viewed as suspicious. The star by the way means that this these claims are not verified.

....Claims that things work but have not been verified.... Many things are claimed but never supported and the products that are promoted are in essence snake oil. If it really does work then it should do so under a controlled environment too.

Having said that if someone manages to conclusively prove to me that snake oil (from any snake) works then I too will consider it, but not before. A couple of flashy web sites and references from the 70-80 that are quoted OUT of context do not constitute proof.

See also
http://www.cancer.org/docroot/ETO/content/ETO_5_3X_Germanium.asp

On a more funny note, I of all people would like to have germanium work... after all how many people are there that have an element named after them? smile

Markus Germann (<- )






Last edited by Markus; 02-25-2009 08:43 AM.

Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
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Joined: May 2002
Posts: 2,152
Markus,

I took zinc sulphate 220 mg in capsule form. It had no taste whatsoever. I also think it helped with the return of my taste buds.

Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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