#9016 12-19-2006 01:12 PM | Joined: Jul 2005 Posts: 207 Platinum Member (200+ posts) | OP  Platinum Member (200+ posts)
Joined: Jul 2005 Posts: 207 | Hi All, Finished treatment 2 years and 13 days ago. (SCC base of tongue, 2 nodes, 6-8 chemo with cisplatin, 5FU, taxol & somehting 3lse, 35 Rad treatments, and ethyol) Just saw my RadOnc and am still clear. According to him, 90% of re-occurances happen within the first two years. I am very lucky. I have little or no xerostomia, my neck scar barely shows, and I am starting to have to watch my weight. I have not posted in a while, but watch the site regularly. I want to thank all who have helped me and wish all who are starting this ugly journey, the best of luck. Fight hard, I am proof that this thing can be conquered. 
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
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#9017 12-19-2006 01:44 PM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2006 Posts: 160 | Thanks so much for sharing. I am over 4 mos. out of tx, and it's good to be inspired by people like you. Gives me hope. The best to you today and many many yrs. down the road. 
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#9018 12-19-2006 01:47 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | How is the dry mouth? And taste? Any hearing loss from the Cis? Did you have IMRT? Congratulations !!!! Wish I were there. LOL
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#9019 12-19-2006 01:59 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Good Holiday news, Steve! Keep it going. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#9020 12-19-2006 03:22 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Great news that gives all especially the newer member hope.
Thank You
Tim Stoj
Tim Stoj
63 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#9021 12-19-2006 03:35 PM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 248 | Great news Steve, All the best.
Mark D
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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#9022 12-19-2006 04:19 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Steve,
Great news and thanks for sharing
I'm noit far behand you and heading for the 2 year mark.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#9023 12-20-2006 03:57 AM | Joined: Jul 2005 Posts: 207 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jul 2005 Posts: 207 | To David CPA,
I also am a CPA. I have little if any dry mouth. I was able to tolerate the ehtyol (sp) injections and I think they helped protect my glands. I did have IMRT radiation. 35 times. Still have my mask. I hate but cherish it becasue it was so instrumental in saving my life. Taste has totally returned. I was an agressive patient. Started working out two weeks after my neck disection. It did take over 18 months to gain most of my energy back. It took a long time to be able to concentrate on any one problem for a length of time. I take levethroid as my thyroid was fried. I feel I am still heeling, but am about at 95% now.
Happy Holidays to all of us and espescially to our care givers.
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
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#9024 12-20-2006 05:24 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | To Steve CPA,
I was born and raised in Richmond, Va. Still licensed there. Have relatives from Winston Salem and spent many a summer in the Tarheel State.
I am only 4 months out and am trying to compare myself to someone similar which you appear to be except I only had Cis and 35 IMRT's.
I have pretty good taste, high freq hearing loss, dry mouth pretty much unchanged from end of Tx, working 9 to 7:30 but tired by then, mentally 100% for new clients and current work but finding some difficulty recalling previous client's work until I review the file, physically not up to pre Tx stamina mainly due to dry mouth making riding my bike an unpleasant experience. The dry mouth thing is really the only complaint I have.
Since you are 2 yrs out, do you remember what you were like appx 4 months out and how do I compare ?
Any comments would be appreciated.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#9025 12-20-2006 08:12 AM | Joined: Jul 2005 Posts: 207 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jul 2005 Posts: 207 | Hi David,
Sent you a private email. You sound like you are doing better than I as far as stamina goes.
Steve
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
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