#8950 12-06-2006 07:40 PM | Joined: Aug 2006 Posts: 13 Member | OP  Member
Joined: Aug 2006 Posts: 13 | Hi All - I'm generally a lurker here but have posted a couple of times. Anyway, today I am 9 weeks post Rad. and Erbitux treatment and had my first post tx PET scan. I didn't expect to get any results until my appt. with my RO on Monday but he was kind enough to call and leave me a message this afternoon saying the scan was terrific and indicated resolution of previously noted abnormalities in left neck and left base of tongue and no evidence of spread elsewhere! I just felt compelled to share the great news. I know it's a long road ahead still but this is a great first step. Mike
Follow my experience at http://mycancerfight.blogspot.com/ Diagnosed 6/28/06 with SCC of the base of tongue. T1N2bM0. Modified radical neck dissection 7/19/06. 35 x Tomotherapy IMRT began 8/15/06. 8 x adjuvant Erbitux. UPDATE: 10/4/11 - Checkup on my 5 year anniversary and I am cancer free!
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#8951 12-07-2006 01:29 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Mike,
Congratulations on your great news. Quickly looked at your blog, but I'm off to work, so I didn't have time to read it. That is some great project. Will check it out further tonight.
I wish you continued good reports and I'm sure you would have a lot to add to the forum. Hope to see you around the board.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#8952 12-07-2006 08:48 AM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Hi Mike,
Congratulations on completing your treatment and the positive results of the scan. It's always good to hear that from one of us. This is a big milestone.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#8953 12-07-2006 09:17 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Congratulations....doesn`t it just feel great to get that first result?
Onward and upward Mike.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#8954 12-07-2006 11:52 AM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2006 Posts: 160 | What great news! Thanks for sharing with us. I am looking forward to reading your blog. Wishing you an endless amount of good clear scans ahead of you!!! (and to everyone else here). Have a great day!  Linda
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#8955 12-07-2006 12:07 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Way to hang in there. I share your feelings of WHEW !!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#8956 12-07-2006 05:39 PM | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | Outstanding news Mike. That has to be such a wonderful feeling. Wishing you many more to come!
Congrats,
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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#8957 12-07-2006 06:08 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Mike, what wonderful news. Having received the same news this past week, I know how elated you must feel. I didn't know that I had been "holding my breath," wondering if my life was going to "tilt" again. I feel like a prisoner set free! I am a lucky girl, indeed. I hope that you celebrated this grand event.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#8958 12-07-2006 08:11 PM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Mike --
I've followed your blog with great interest, since we live in the same area (I'm the "anonymous" who asked in your comments some weeks back if you were the same Mike from Ashburn quoted in the paper).
What great news indeed! And best wishes, too, to your wife and son, for helping you get through it all.
All the best,
Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#8959 12-08-2006 01:38 PM | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Wow, Mike this is great news!
It seems we have a lot in common.
Same name, Mike.
Diagnosed almost the same day, 6/27/06
Similar diagnosis
Got the same good news you did, at the same time you did, yesterday afternoon!
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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