#89133 01-29-2009 06:05 AM | Joined: Oct 2008 Posts: 10 Member | | Member
Joined: Oct 2008 Posts: 10 | Hello Everyone,
I had a partial Glossectomy done 12/06 for stage 1 SCC. Recently I have noticed that where the incision is on my tongue i have developed some scar tissue. This is very tender and sometimes rubs against my bottom teeth and causes irritation. Also, when I eat certain foods with spice this seems to irritate it also. I guess what I want to know is this normal for the scar tissue to be so tender. I have looked at my tongue and do not see any sores. I can see the scar tissue and it is tender. I just had a routine Cat Scan done last week and I have an appointment this Monday 2/2/09 with my Oncologist for blood work and to check-up and to get the results of my Cat Scan. Then the following week I go see my ENT for routine check up and scoping. I am trying to stay positive but it is very hard. I am just worried about this tender area on my tongue. Any feed back would be appreciated.
Debbie
Partial Glossectomy 12/06, stage 1 SCC, right side
11/07,stage III SCC in right side of neck 12/07, Modified neck dissection,48 lymph nodes removed,neg. 1/14/08 startedChemo-cisplatin once a week for 5 weeks, Radiation everyday for 5 weeks.Finished treatment 2/15/08. Cancer returned,sugery 4/5/10.
| | | | | Joined: Mar 2006 Posts: 114 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2006 Posts: 114 | Most of us would tell you that the mouth takes a long time to heal - much longer than say, a laceration to your skin elsewhere. That's part of the reason why it can take literally months to heal from 7 weeks of radiation, AFTER the radiation is over. My tongue surgery (and 7 weeks subsequent IMRT) was 3 years ago and my mouth is still very tender to this day in the area of the surgery, especially sensitive to spices and such. I used to love spicy food, hot sauces, etc but now I can't eat any of them because it's still so tender.
Sounds like you'll be seeing the doctor shortly - hopefully he'll look at it and tell you it's just a matter of 'normal' healing process for you. Hang in there!
Age 41 - Stage 2 SCC tongue Dx 2/06. Cisplatin x3, IMRT x35. Mets to neck node discovered 7/07. RND 40 nodes removed, margins not clear. Cisplatin, Taxotere, 5-FU Fall 07, then IMXT/Erbitux for 7 wks. Inoperable mets to both lungs and pleura Dx Oct'08. 4 cycles Carboplatin, Erbitux, 5-FU so far.
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | Hi Debbie,
I'm basically having the same issues, the area with all the scar tissue is very sensitive. When I touch that area it's very rough...I'll also be seeing my ENT soon...In fact, I see him every month.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | This is an issue I too have asked about and am still curious on. The top of my tongue is numb but yet it really bites with anything like even katchup. I have a rough spot something like dry skin closer to the back of my tongue. I have had sharp pains at the tip of the tongue just above the connection of the free flap then lately my tongue has been doing some funky tingling thing. I was scheduled to see my onclolgoist on Feb 25 but got a letter saying the appointment will have to be pushed back to March 31. So if anybody gets any insite I would be glad to hear theories on this ...
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
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