For me, the first month after tx everything tasted burnt. Like charcoal, even water had a burnt taste. It was awful. Then came the overly salted taste which was around for a couple more months. The worst one I went thru while my taste recovered was the over spiced phase, that hung around for a long time. Now, Im 1 1/2 yrs post tx and tasting things pretty well.

I was feeling adventurous so took my children to a buffet. Figured I could try a bunch of things to get an idea of what I can and cant eat. I made the mistake of trying chinese lo mein. There is some type of spice in it which burned my mouth so bad. I gulped my chocolate milk, furiously wiped my tongue with napkins and actually ran for more chocolate milk and drank 2 more glasses right there at the beverage station. Oh well, probably gave some people a good laugh. That was about a year ago, I havent been brave enough to retry it, but one day I will.

I'm so glad I re-read these posts. I have been experimenting with pudding this week and I have not been able to find a flavor that taste good. It is really making trying to move up the solid food chain difficult because none of the ones I've made have tasted like they should. I will keep trying and remind the therapist on Friday that it's only been 3 weeks now since my last radiation treatment.

Patty

Hi Christine, your post is funny, because the other day I got hungry,been a while seen I wanted food so I went to a buffet, the food smelled so good, I got everything I loved to eat, and I ate and ate. it tasted good but not like it shouldof, but I was hungry and it had taste. Need less to say I over ate and it all come back up about 6 hours later, The good part I had taste and got to eat, even if I didn't get to keep it......LOL
Anything chocolate is gross and I use to love chocolate milk. after the passd few weeks its one day at a time, at least I'm still here and I can walk for now. Kept getting weaker and got my gp to do lab work, he had me to come back in two weeks for reselts, wasn't good, fell 3 times tring to take a badley needed shower befor doc. he put me in hospital and gave me 2 units of blood and some other stuff, feel a lot better. I go for 3 months check next month, ct, blood, everything. I hate to even go back becase all I could get from them was mouth,and they marked my chart that I was weak and falling, said they didnt do blood work or anything unless you are taking treatments, They should have least told me to go to gp, instead of to use walker. (walker didn't help) I have 4 doctors appointments and 4 test in Feb. sure hope you are feeling better. have a great night,

Hi I have been reading a lot of posts concerning taste but it is usually due to radiation. I have lost taste or feeling on the top of my tongue and had surgery treatment. Since my surgery spicy and certain foods bother my tongue. I have also read that sensitivity to these things is cause for alarm and possible "hot spots" I guess I am wondering if it is possible for the top of the tongue go kinda numb from surgery yet be sensitive as well be caused from surgery? (free flap was part of the proceedure)

The chemo left such a strong metallic taste in my mouth I can't be sure that it was the radiation. My body smelled like a toxic waste dump for several weeks after my last infusion. The stuff literally oozed out of pores. If you are on Cisplatin it has to be flushed out with lots of water. It can damage your kidneys if you are not careful.