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davidcpa #88494 01-20-2009 07:47 AM
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David, That sounds like something out of the Catch-22 novel. One of my favorite books.

Uncle Vern, I saw your GF and I almost fell on the floor when I saw the light bulb trick...I knew what it was going to be...but, I didn't realize you were going to look like Uncle Fester! LOL

And where the heck were you taking that camper? That looked like suicide...

Last edited by Ray1971; 01-20-2009 07:49 AM.

7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #88505 01-20-2009 09:52 AM
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The motorhome was on a one-way trip to the bottom of a canyon in the Cascade Mountains, trust me, diging that road with a chemo port in was LOTS of no fun. Wasn't so good on the motor home either, the trees pretty much ate all the doors and stuff as we squeezed it between them. as it turns out, quite an accomplishment for myself and the other cancer survivor ( 70 years old ). But, if we had lost that motorhome down the canyon, well lets just say, Um St St Stupid is, um as stupid does... [{:-)
We still need to build something over the top of it to keep it from being crushed under snow.
A year before that, and the day after getting the port put in, I wound up stranded up there on a "quick trip", I had to hike in for shelter and hike back out the next day. The Doctors were fine with that, but the nurses were spitting nails! LOL
More on that trip later.

Last edited by UncleVern; 01-20-2009 10:22 AM.

ENT conjectures before, no PET approved by HMO. Metastasis 11/06. CT 2/07: mass RT sub-mandibular gland. 7 CM mass/tonsil, base of tongue removed, biopsies 2/07 and 3/07. Vein lost, RT face numb. PET scan: spot in chest, un-investigated. Oral surgery 4/07. 3X Cisplatin and 32X IMRT from 4/07-5/07.
UncleVern #88563 01-20-2009 09:20 PM
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Ok I like uncle Vern. I think that the motor home should become our "camp" (I'll help with that snow roof) and Damn the light bulb is funny!

I was asked by a neighbor (happens to be a doc) to fix a light in his garage. (really not that tough) I had the light hanging by wires when I asked him to go get a pliers. When I heard him coming back I stood with my fingers in the socket and shook like a poplar tree. He looked at me and nearly fell over. Docs are really way too serious.....


Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
Mark #88567 01-20-2009 09:58 PM
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Ah Vern, loved the pictures and the stories! Keep 'em coming, as humor and coping is how we all get through this. It's a goofy kind of humor, and just what I needed tonight.
I'll be looking for more of your posts, and wish you well in your own journey.


Elin, artist and Wife to Ron, neck lump 8/08
Ron, age 68, Dx 11/23/08, T2N2bMx BOT Stage IV, treatments begin January. cisplatin x 3 and rads 35x, one chemo down and rads x4 as of 1/20.
Elin #88588 01-21-2009 10:29 AM
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Great pictures. The light bulb is funny. To me, even funnier is the visit from the psych doc cuz of Ivy. What a beauty she is!!! Sometimes the staff take things the wrong way and with no sense of humor.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #88612 01-21-2009 07:28 PM
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You are just what I need too Vern. Your stories and your photos are very funny and thank Pete D for asking about the light bulb!!

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Good1 #88623 01-22-2009 12:30 AM
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It is my pleasure to give a smile. So I will write these until someone says stop. The server admin should feel free to ask me to publish somewhere else if they see the need.

Hey Lady! Do you sell Spit?:

There are things that doctors tell you, but you don�t really understand the meaning. Well, that was the case with cancer treatments resulting in my lack of saliva production. That didn�t seem like a big deal at the time, but it really is a problem.

A couple of weeks ago, I am picking up my car from some repairs and decide to make a pass through town to do long overdue errands, despite the bad clothes, messed up hair, 5 days worth of stubble and a little car grime.

Going into the only store that will carry my �saliva substitute� I find a line at the pharmacy that extends the width and length of the store and the young lady at the cash register is snarling. So I circle the store, impulse buy and scare the hell out of other shoppers with my appearance.

Finally, the line is gone and I step up to the counter. The young girl at the cash register doesn�t look up as she barks �can I help you?� Just grunting I continue to empty my hands, giving her time enough to be irritated and truly focus her attention on me. Perfect!

Babbling and acting nervous, like a 14 year old trying to buy condoms, I finally ask her �Ummm, I was wondering, umm� do you sell spit?� Speechless, she crosses her arms and scowls at me. The pharmacist looks up from his tasks, worried about what kind of old NUT he has at the front counter.

Giving a full 5 count, I apologize, pointing at the shelf where my order is at telling her that it�s really called saliva substitute and it�s...

Rattled, she goes the other way, barking something about not having it and that I would have to special order something like that. Again I point at the order and try to tell her I HAD actually ordered it � as she cuts me off, INSISTING that it has to be a special order. I point at the shelf and started to speak as � she cuts me off again.

Finally the irritated pharmacist walks around to the counter, grabs the two boxes and hands them to her. She marches up to the cash register and starts to scan them in, stating rather indignantly that �she wasn�t sure that�s what it was called� HA! I got her again, saying: �What? The brand name spit? Nobody would buy THAT!�

I start to explain to her that I can�t get pharmacies to take this matter seriously; they either laugh and walk off or refuse to carry it for long because they can�t make any money on it and ask her to order it ahead for me. Still irritated, she proclaims that she does not understand what the big deal is and I can just order more when I run out.

The pharmacist bounds forward, eager to demonstrate some customer service to his trainee, telling me he takes this seriously, explains to her that I can't ever run out and asks me if I had ever tried eye drops. Now I have to wonder if I am about to get �the business� back for a change right? No, he is suggesting that I use medicated eye drops in my mouth to gain better control than with the drugs I am using.

The young girl�s eyes widen as the pharmacist and I banter at the level of any two medical professionals. Suddenly that greasy, homeless looking �hillbilly� went from wiping snot on his sleeve and yelling �hey lady, du u sell spit?� to a needy and intelligent customer. She put on her coat and started to leave as I shouted behind her �hey lady, do u sell spit?, leaving me to laugh about this one for days and wonder if the message I was sending her sank in.
Next time, I wear a suit eh?
Work retail? If you see me coming, RUN!


ENT conjectures before, no PET approved by HMO. Metastasis 11/06. CT 2/07: mass RT sub-mandibular gland. 7 CM mass/tonsil, base of tongue removed, biopsies 2/07 and 3/07. Vein lost, RT face numb. PET scan: spot in chest, un-investigated. Oral surgery 4/07. 3X Cisplatin and 32X IMRT from 4/07-5/07.
UncleVern #88643 01-22-2009 12:21 PM
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I LOVE YOU--you make my day.
Thank you so much for readings that chuckle my mind, and make me laugh, and yet are so "right on" about the "sir-VICE" industry.
Me, I doubt I'd have been so nice. Ever.
Also very nice to have a picture to go with the message, Vern...
You might go over and provide some much-needed lifts in the blog section, tho', where others can enjoy it as much as I.


Elin, artist and Wife to Ron, neck lump 8/08
Ron, age 68, Dx 11/23/08, T2N2bMx BOT Stage IV, treatments begin January. cisplatin x 3 and rads 35x, one chemo down and rads x4 as of 1/20.
Elin #88766 01-23-2009 07:37 PM
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Ah,
Thanks for the suggestion Elin.
Being a newbie here I hadn't seen the blog section.

Starting at the blog entry "Attitude, Humor and Fun, Fight Back!" I am going to try to post what I can remember in a time line. Others, including educators and the staff at a chat system I help manage have asked me to publish.
Finding the OCF forums an inspiration, and the return of some energy seems to have me writing again. Compiling the materials I have already done and filling in the gaps will take a bit of time and effort, but well worth it for my own sake.

Once complete, the same material will eventually be posted at http://www.uncleverns.blogspot.com/

Lets have some fun with this, I would love to read humorous accounts from others here. Certainly I can't be the only wild eyed NUT out there. I hope never to offend and offer to withdraw anything not well recieved.

UncleVern


ENT conjectures before, no PET approved by HMO. Metastasis 11/06. CT 2/07: mass RT sub-mandibular gland. 7 CM mass/tonsil, base of tongue removed, biopsies 2/07 and 3/07. Vein lost, RT face numb. PET scan: spot in chest, un-investigated. Oral surgery 4/07. 3X Cisplatin and 32X IMRT from 4/07-5/07.
UncleVern #88767 01-23-2009 07:54 PM
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Uncle Vern ( I actually had an uncle Vern) Anyway, you are a real "toot". Keep em coming ! LOL


Husband 2/3 tongue removed March 2008. Free flap. . Stage IV. Radiation and 3 chemo's (cisplatin,taxol & erbitux). .Pet scan Aug 08 showed mets to lungs .Oct 08, recurrence. - In the arms of Jesus, July 15, 2009
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