| | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) |  "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Like many here I am looking forward to the next update on Jim.
Good to hear all is going well so far and pray he continues to recover quickly.
Fom one of his Angels over the sea.
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2008 Posts: 38 | Hi everyone. Just had to tell you I just talked to Jim on the phone and he said to tell all of you "hello", and there is a 99 percent chance he will get to come home tomorrow. He can't wait to get back on here and chat with all of you. He's still having pain, but it sure was a blessing to hear his voice again. He said to tell you all that he's had a few really "good lookin" nurses taking care of him. LOL That's my brother !!! lol And I wouldn't have him any other way. LOL So, prayfully, he'll be back home tomorrow, and he can chat with everyone. Thanks so much for the prayers, too. Take care everyone. Love, Carol | | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Thank you for staying connected and keeping us updated on Jim. What a fighter he is!!!  That is fantastic news!!!! (PS, thank you for the email as well!)
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thank you for the update, Carol. Sounds like Jim is feeling pretty good if he is up to checking out the nurses. Glad to hear he has done so well. Jim is very special to us here on OCF, he is a great guy and we miss him.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Great news for Jim and hopefully we will hear from him again soon.
I will keep you and Jim in my prayers Carol. Thank you so much for relaying his messages and keeping everyone up-to-date.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Chasing nurses already is he? That's our Jim. Maybe he'll catch one and bring her home. Glad to hear is feeling so well and is getting to come home. Thanks for the update.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Jun 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 42 | hi all,,,
just talked to jim, they have scrubbed the plans of him going home today... i guess when he stands up his bp goes up from 120/60 to 160/60 and he has alot of pain from the surgery he also says his throat and tongue feels like its on fire.. he has been getting different iv all day long and hopefully he will get to come home tomorrow...dont think he will be back online chatting as soon as he gets there but he should be home...will have to keep you posted.....
Barb
Barb
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thanks for posting Barb. Hope he is well enough tomorrow to be sent home.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2008 Posts: 38 | Hi everyone. Well, Jim is home. He's still having pain, but at least he's home. He said to tell all of you "hello", and he will be back on the site as soon as he is able. He said the doctor told his daughter there is another aneurism, but it's tiny and the doctor didn't want to do anything with it now. Jim's been a trooper through everything he's gone through in the last year. I'll keep you all updated. Thanks again, Carol | | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | [quote=Carol Cunningham]Hi everyone. Well, Jim is home. He's still having pain, but at least he's home. He said to tell all of you "hello", and he will be back on the site as soon as he is able. He said the doctor told his daughter there is another aneurism, but it's tiny and the doctor didn't want to do anything with it now. Jim's been a trooper through everything he's gone through in the last year. I'll keep you all updated. Thanks again, Carol [/quote]
Carol, thank you for the continued updates. I am thankful that he is home. Perhaps now he will heal and be in better spirits in the comforts of his own surroundings!
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
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