#88024 01-14-2009 09:51 AM | Joined: Jan 2009 Posts: 11 Member | OP  Member
Joined: Jan 2009 Posts: 11 | I was diagnosed in May 08. Had a partial glossectomy and neck dissection. The cancer was stage 3, but the nodes came back clear. I haven't had to take any treatments yet. I do currently have a spot coming back. We are on the way back to the doctor tomorrow.
I am 38. I have had problems with a spot in my mouth that would not heal since I was 21! I had it tested and it was cleared. Twelve years ago I had it tested and even though it was not cancer the doc. suggested that I have it removed. So I had a partial glossectomy. The spot was back within a month of the surgery. I went to many different doctors and no one could tell me exactly what it was. The spot kept getting bigger. Last year the whole area swelled up and started growing rapidly. I went to Mayo and was diagnosed with cancer in May. I had another partial glossectomy and neck dissection. I was amazed to find this site. I am glad to see that there are so many survivors. I wish all of you the best of luck.
JB
SCC tongue stage 3. 43 nodes clear.
Surgery in 1996. 2nd surgery
(cancer) 2008. 3rd surgery will be in Feb 2009.
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | Welcome to the site JB. We're the same age...you'll find great advice here...no other site compares.
Are you having additional treatments? How large was the tumor?
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Jan 2009 Posts: 10 Member | | Member
Joined: Jan 2009 Posts: 10 | Hi JB so thinking of u know, am in UK what time is it there?
Mum: rare muco epidermoid carcinoma of left tongue base. Partial glossectomy with radial free flap reconstruction, left modified neck dissection, tracheostomy. Due to undergo radiotherapy.
| | | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2008 Posts: 228 | ARKANSAS!!! My alma mater (I graduated from UofA in 06)!! Sorry you had to find this board, but the people are great!
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi JB,
This is a wonderful site, you will find a lot of good information here. What a shame that it was not found until May, but I'm happy the nodes were clear. That is so important. I also always sore spots on my tongue, actually just got it biopsied today.
Good luck to you and let us know of any questions!!
Suzanne
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | JB
Welcome to OCF. You will find tons of help here. There is so much info on the main site and both places have a search function. You mentioned that you have a spot coming back???? Lets hope that a biopsy will give good results. Thats the only way to know for sure if its cancer. You have already undergone some treatments, hope you dont need anythign else and have a healthy future.
Best of luck with whatever is upcoming.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2009 Posts: 11 Member | | OP Member
Joined: Jan 2009 Posts: 11 | Thanks to you all for the welcome. Ray, our cases sound almost the same! Except mine was on the right side.
Zahra, good luck and hello there in the UK.
Sobradley, I am glad your treatments are over! Hope it stays gone!
Suzanne, I hope your test came back ok. Suzanne is also my wifes name!
Christine, Thanks for the welcome. I'm glad to see your scans are clear!
I will be having my third surgery on Feb. 2nd. Wish me luck. I will be sure to let you know how it goes.
JB
SCC tongue stage 3. 43 nodes clear.
Surgery in 1996. 2nd surgery
(cancer) 2008. 3rd surgery will be in Feb 2009.
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | JB--Good luck...all of my fingers and toes are crossed for you...I'll also throw in a few prayers.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
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