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#88024 01-14-2009 09:51 AM
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Jbabb Offline OP
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I was diagnosed in May 08. Had a partial glossectomy and neck dissection. The cancer was stage 3, but the nodes came back clear. I haven't had to take any treatments yet. I do currently have a spot coming back. We are on the way back to the doctor tomorrow.
I am 38. I have had problems with a spot in my mouth that would not heal since I was 21! I had it tested and it was cleared. Twelve years ago I had it tested and even though it was not cancer the doc. suggested that I have it removed. So I had a partial glossectomy. The spot was back within a month of the surgery. I went to many different doctors and no one could tell me exactly what it was. The spot kept getting bigger. Last year the whole area swelled up and started growing rapidly. I went to Mayo and was diagnosed with cancer in May. I had another partial glossectomy and neck dissection. I was amazed to find this site. I am glad to see that there are so many survivors. I wish all of you the best of luck.
JB


SCC tongue stage 3. 43 nodes clear.
Surgery in 1996. 2nd surgery
(cancer) 2008. 3rd surgery will be in Feb 2009.
Jbabb #88030 01-14-2009 10:24 AM
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Welcome to the site JB. We're the same age...you'll find great advice here...no other site compares.

Are you having additional treatments? How large was the tumor?


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Jbabb #88037 01-14-2009 11:53 AM
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Hi JB so thinking of u know, am in UK what time is it there?


Mum: rare muco epidermoid carcinoma of left tongue base. Partial glossectomy with radial free flap reconstruction, left modified neck dissection, tracheostomy. Due to undergo radiotherapy.
Zahra #88044 01-14-2009 03:23 PM
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ARKANSAS!!! My alma mater (I graduated from UofA in 06)!! Sorry you had to find this board, but the people are great!


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


sobradley #88066 01-14-2009 07:28 PM
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Hi JB,

This is a wonderful site, you will find a lot of good information here. What a shame that it was not found until May, but I'm happy the nodes were clear. That is so important. I also always sore spots on my tongue, actually just got it biopsied today.

Good luck to you and let us know of any questions!!
Suzanne


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
suzanne98 #88129 01-15-2009 04:25 PM
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JB

Welcome to OCF. You will find tons of help here. There is so much info on the main site and both places have a search function. You mentioned that you have a spot coming back???? Lets hope that a biopsy will give good results. Thats the only way to know for sure if its cancer. You have already undergone some treatments, hope you dont need anythign else and have a healthy future.

Best of luck with whatever is upcoming.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Jbabb Offline OP
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Thanks to you all for the welcome. Ray, our cases sound almost the same! Except mine was on the right side.
Zahra, good luck and hello there in the UK.
Sobradley, I am glad your treatments are over! Hope it stays gone!
Suzanne, I hope your test came back ok. Suzanne is also my wifes name!
Christine, Thanks for the welcome. I'm glad to see your scans are clear!
I will be having my third surgery on Feb. 2nd. Wish me luck. I will be sure to let you know how it goes.
JB


SCC tongue stage 3. 43 nodes clear.
Surgery in 1996. 2nd surgery
(cancer) 2008. 3rd surgery will be in Feb 2009.
Jbabb #88198 01-16-2009 01:45 PM
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Posts: 716
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JB--Good luck...all of my fingers and toes are crossed for you...I'll also throw in a few prayers.


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better

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