#87219 01-02-2009 09:31 PM | Joined: Jan 2009 Posts: 6 Member | OP  Member
Joined: Jan 2009 Posts: 6 | Hello All !!
It is me Shar ... I am back !! I wasnt really gone , I have been reading , yet I could not and still cannot get into my old account ..I have tried password retrieval and even when they send me a temp one ..it does not work ..so I have created a new account so I can keep in touch !!
Things here are OK I guess I have a lump in my left side near my ear and Jaw ..Ent wants to watch it .. Me ... Not so much . I have watched it go from pea size ( which I thought I was imagniging ) to this , which now you can see .
I have had a few biopsies over the year all came back clear ! YAAAAAAAA !! Normally I dont worry ..this time ,Just a little I am .
Going to school full time for clinical medical assiting with a transfer in for the nursing program so lets hope that all goes well ..
Cant wait to hear from all of you ..you have been in my heart and on my mind always !!
Shar
T1NoMo Left lateral Border of Tongue. 35 at DX
Partial Glossectomy , Modified Radical Neck Dissection
All Nodes Clear... No radiation
Frey's Syndrome & Trigeminal Neuralgia as result of surgery
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hey shar
great to see you again.
Hope this new year brings you all you hope for.how are the kids?and how is that husband of yours?
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Hey Shar,
Hope it proves not to be cancer.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Sounds like you have been busy and productive. Proud of you.
You keep us posted-we are here for you!
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Its nice to see you back on OCF again. Hope this turns out to be nothing. Please keep in touch, its always nice to hear success stories such as yours.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Shar,
Glad you got on again. I am so sorry you had so much trouble with your account.
Looking forward to working with you on the volunteer project!
Take care and will be in touch.
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Welcome back, Shar! I hope you'll insist on somebody taking your new lump seriously, and I sure do hope it turns out to be nothing. With your history...and ours!....I wouldn't be comfortable waiting too much longer. Be a pest!
XOXO
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Hey there Shar, Long time no hear from but it sure is nice, I am proud of you going for that education and just know you will be great at it. When I got a temp pass word, I had to use capital letters to make it work. Never did get the original one to work again. Thw temp is fine. Good luck and Take care.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Shar,
Welcome back. I've got the same problem with my old computer. I can read but I can't post anything even though it says I'm logged in. I found that if I cut and pasted the password, it would accept it, but not if I typed it even in proper case. Still couldn't post though.
I hope this new lump is nothing, but keep in top of it.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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