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Joined: Jul 2003
Posts: 235
Gold Member (200+ posts)
Gold Member (200+ posts)

Joined: Jul 2003
Posts: 235
Hi,
A pre-op chest xray indicated an abnormality in the lung so we followed up w/a CT scan. The first part of the report should be manageable, the second part of the report makes me a bit uncomfortable. The findings are as follow: Patchy nodular oopacity in the right middle lobe w/out broncial obstruction has a morphology suggestive of an infectious etiology, more likely bacterial than mycobacterial. This opacity is not suggestive of a malignancy. That gave me a sigh of relief. But then it continues: new subpleural micronodule in the right middle lobe. New 3-4 mm nodule in the left lower lobe. This doesn't make me too comfortable.

Impression: New small indeterminite pulmonary nodules described above. Follow-up CT scan in 6 months is suggested to exclude an active process. Active process? I don't like the sound of that, and I'm so not agreeable to waiting 6 months for another scan. Fortunately neither is the oncologist, he said 2-3 months. However, seeing how rapidly things progressed the last time when I was told it wasn't cancer...and then was told it's only "superficial" (fortunately we've got better doctors now), I dunno. I suggested a bronchoscopy, but evidently the tumor board doesn't think it's necessary. I thought it wouldn't be a bad idea to go in there, get some tissue and biopsy it. I love the doctors we've been working with, but I'm also wondering if there's something else we should be doing as opposed to waiting 8-12 weeks for another scan. My thought process is that a lot can happen in that period of time. Perhaps I'm worrying unnecessarily, but perhaps there's something we can do now to get some definitive answers. I see no reason to give anything potentially bad an opportunity to get worse. I'm thinking of talking to another doc at a different hospital just to get another slant on things. I almost feel like a traitor, but I'm not so sure I'm comfortable waiting around 6-8 weeks. An infection should get cleared up w/antibiotics, but nodules, I believe, are potentially bad things that don't respond to antibiotics. Anyone have any thoughts on my dilemma or my interpretation of things?
Thanks,
Dave


Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
Joined: Oct 2006
Posts: 248
Gold Member (200+ posts)
Gold Member (200+ posts)

Joined: Oct 2006
Posts: 248
David, I am sorry to see you go thru the anxiety of waiting, I've recently been thru the samething. To make a long story short it ended up being nothing with my follow-up xray.They used words like (Opacity),(Granuloma) and (Nodules) in both my reports. Scary-----YES, but more often than not it is good news. Thoughts with you.
Mark D.


Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
Joined: Apr 2006
Posts: 583
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Dave,

I think if you are that concerned, get a 2nd opinion. This way you can relax, you do not need this type of anxiety. Are you going to a cancer clinic?

I wish you well, and hope things turn out ok.
Take care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
Joined: Sep 2006
Posts: 8
if
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Member

Joined: Sep 2006
Posts: 8
I absolutely agree. Don't wait, run don't walk. This is your life, and you need to get on the bull and ride. My husband is of the ilk that he should stick with whatever the doctor says. He often forgets not everyone is committed to quality, you are not being a traitor, except to yourself if you don't follow your own inclinations.


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