| | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | Well I guess I got my own answer...I tried some wine. The first sip tasted wonderful...then it started not necessarily burn but stung a bit then everything started to tingle and not hurt but tweek I guess so I never finished the glass. There was my going with the flow...
I talked to a family member and found out that her mom at 78 also went through oral cancer....And my opa he has had a sore in his mouth since he had his teeth removed and got dentures...I talked to one of his daughters and she didn't think we could ever talk him into seeing a dentist...I didn't have to after seeing me and hearing my story he asked me to "hook him up" so to speak...wow what a turn around the man dislikes doctors of any kind....So there is hope yet...
So for today...It has been a great christmas!!! I wish the same for one and all!!!
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | He may dislike doctors in general, but I'd bet that seeing your experiences brought home the danger of waiting instead of finding out!
When I was in hospital last time, one of my IV lines was partially clogged so the nurses flushed it with cranberry juice (for the acid) -- Strangely, that set up a craving for cranberry juice so I got some after discharge -- Burn!!!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Congrats for getting him so interested, he wantsto be checked, Dianne. You get an extra star up there tonite . I'm so glad you had a nice day. I went to my daughters and then we all went to to my exes for supper. She is still one of the better cooks in the valley. I brought home some of her cherry and some pumpkin pie. Ummmm good as they say.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Picture's worth a 1000 words.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | You bet and in person...guess I have my work cut out for me...going from a patient to a possible care giver...Interesting...He has been having trouble with his mouth for years just last year had all his teeth removed...and they were all rotten..
and speaking of pie we got the most fantastic bannana creme pie...it is inches from heaven!!
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | Shots would have gone down quicker! JK...drinking anything with alcohol would throw me in a tail spin right now.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | |
| Forums23 Topics18,252 Posts197,147 Members13,332 | | Most Online1,788
Jan 23rd, 2025 | | |
|
