| | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I checked with a Gastro-Doc and he has fairly open schedule, so I should be able to get a good PEG this time around!
Decided I will make up wrist tags for my brachycardia (so they will set the pulse alarm thresholds low enough that I can go to sleep) and my enlarged prostate (So the Pee Police will not be on my case so quickly) and of course, I will put in the ear plugs before surgery so they will be in for the noisy ICU!
Now all I need is a surgery plan and date.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | Atta boy....you got control and I will be keeping an eye out for your posts...We are all by your side...Sounds like you got all the soldiers ready!!!
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | "No plan survives initial contact with the enemy", so the ability to adapt is a good thing to have!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 |
S#!T Pete - so sorry to hear that you have to deal with this again.
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Glad to hear your making battle plans. You are fortunate to get in easily for the Gastro surgeon. Mine has a 2 month wait for even a consult. I would gladly give you my PEG, it has served me well.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Just hoping I won't need another trach! The PEGs are not a big deal, but the trach is.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Pete,
Rotten news. PEG, trach, whatever it takes just get rid of the monster.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I just got a call (after 7pm) from Dr Haakenslash -- As expected, the tumor board agrees, and so do I, with the surgery -- It will be both from my mouth and through the side of my throat -- Tissue graft donor site will be my thigh -- Because it will affect my swallowing, I will need a PEG for the foreseeable future and a trach for the short term -- More tomorrow about when after he and his scheduler consult.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Whoo hoo..........I won the graft site prediction lottery! I too was freaked about getting a trach again, but truth is you get through what you have to. At least the 2nd time you know what to expect. Remember you can get through anything.
I was surprised at how they do a graft. It was almost as if they took off a layer of sod in a very precice rectangle, then they just covered it with a guaze type thing and let it heal in the open air. As the wound heals and the scab is removed, the gauze comes with it. Hope my description doesn't gross anyone out but it really wasn't gross to me.
Let us know surgery date. In the meantime - Hugs.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Oct 2006 Posts: 46 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2006 Posts: 46 | Hey Pete, sorry to hear you have more surgery to go through, but you are in excellent hands with Dr. Futran. I have been impressed with how you have managed things thus far - with humor and strength - a great combination that will surely serve you well with this next round. Let me know if you'd be up for a visit at UW; I'd enjoy meeting you in person.
Take care,
-Tricia
CG to spouse, tonsillar SCC, T2N0M0, tonsillectomy 9/06, 35 rad tx finished 12/06, no chemo. Positive PET 3/07 in tonsillar fossa (residual tumor), surgery 4/2/07 composite resection tonsillar fossa and BOT w/forearm graft and right ND.
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