| | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Dear Kalen,
Your mom and I shared some personal emails a while back, she was such an amazing peson and a strong advocate in positive thinking. She helped me personally, like so many others here, during the times when I didn't think I could get off the sofa and encourage my own mom to get up and try again.
God bless her and all of you. You'll be in my thoughts.
Love,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | I wish to add my condolences to the family and friends as well. I have just been rereading some of Lani's postings over the last couple of weeks.
Even though she is now at peace we will all miss her here.
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Dear Kalen- I'm so sorry to hear about your mom. She was so positive and sounded so strong I didn't realize her condition had become so dire. I am so sorry for your loss.
Please take care and send my condolences to your family.
From what she presented herself to be here she seemed to be a really wonderful woman.
Kate
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I just want to say, "Thanks for all the good you have done LANI, for your friends in OC Forums." REST IN PEACE and someday may our spirits come together in Heaven.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | You and your family are in my thoughts and prayers. I am so sorry.
susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Kalen:
Im so sorry to hear of the loss of your mother. She was such a nice lady. She was only here a short time and she made lots of friends. May your good memories help give you comfort at this difficult time. She spoke of you often with much pride and love.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Please except my condolences on your lost and know that she will be missed here. Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Kalen, thank you for telling us this sad news. Lani and my husband both went to Shands for their treatments and we compared notes. I had no idea she was that ill. We will miss her greatly, because she was a grand lady, full of positive thoughts and sentiment and we were excited to some day meet in Gainesville. Our sincere and heartfelt sympathies to you and the rest of Lani's family. Warmly, JaneP
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | | Joined: Sep 2008 Posts: 10 Member | | Member
Joined: Sep 2008 Posts: 10 | Dear kalen,
I read about Lani's passing with a lump in my throat. I was actually thinking of sending her a PM when I came across this thread. We exchanged a few PMs a few weeks ago and I think she is really a wonderful person and genuinely caring to others who have qualified to join this Oral Cancer Club.
I will miss her motivating words, sense of humour and her undying spirit.
My condolence to you and your family.
Sharifah
SCC on the tongue. Stage II. Total Glossectomy 04/07/08. Recurrence in July. Also Stage II. Partial Mandibulectomy 08/13/08. Radical neck dissection in both ops. All lymph nodes negative. Radiation starts 10/10/08
| | | | | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | How does one respond to such news...........
Kalen, Thank you for letting us know..........
My heart goes out to you and your family........
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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