#8539 10-13-2006 03:47 PM | Joined: Oct 2006 Posts: 1 Member | OP  Member
Joined: Oct 2006 Posts: 1 | I using the search function for "Reno Nevada" and got tons of matches, but none of them are from people in Reno. (Bug in the search function?
My goal is to offer myself to local people as a someone to talk to during treatment, having completed mine nine months ago and coming out of it n pretty good shape.
When I was first diagnosed, my sister put me in touch with one of her friends in Washington DC who had completed his treatment a year ago, and talking to him just a couple times a month was a HUGE help for me.
Cheers,
Tom
Age 44, SCC Stage III roof of mouth and one lymph node, T1/N2/M0, Cisplatin x 3 concurrent with IMRT x 36, Tx completed 1/18/06. Several PET Scans with clear results. Just had one year anniversay with no new cancer!
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#8540 10-13-2006 10:59 PM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Oct 2005 Posts: 122 | Hi Tom,
Good for you wanting to help! If you go to the directory of members, it will allow you to search by location. When I typed in Reno, NV, you popped up. You might try plugging in Nevada or other city names close to you.
I have had the privilege of talking to a few members from my area and hope I have been helpful. Lots of times, people will see a post and private message the author.
Sincerely,
Lisa
SCC Tongue T1N0M0\Dx 3-10-03
Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03
3 Year Survivor!
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#8541 10-14-2006 12:14 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Tom,
also let the local ACS chapter know that you want to be involved in patient advocacy. Let your ENT know as well. Spread the word out to churches and your friends. It won't take long and you will be working with people one on one - be prepared to come up to speed on other forms of cancer as well.
If you are up to it, you may want to be involved organizing a mass OC screening in your area, partnering with us. Contact me privately for more details. I am also looking for volunteers in Northern California, Oregon and Washington.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#8542 10-14-2006 05:41 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Gary, what's involved in a screening?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#8543 10-14-2006 06:15 AM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Tom it has been almost five years and the radiation people and the ENT still refer local folks to me. They will always have anxious patients, so just tell your docs you are willing and able. And good for you! | | |
#8544 10-14-2006 06:24 AM | Joined: Sep 2006 Posts: 75 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Sep 2006 Posts: 75 | Gary
I would be interested in doing a Mass screening
in my area, let me know what I would have to do.
Tongue Cancer, stage 4, spread to neck/ Radical neck, 3 chemos, 33 radiation. 5-18-2005
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