#6913 02-22-2006 12:09 PM | Joined: Feb 2006 Posts: 136 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Feb 2006 Posts: 136 | Any one know if the Barrett Cancer Center in Cinci is a good place to go for oral cancer? That is the one that is closest to me - and probably the one I'd be referred to for radiation / chemo if needed. I am through the initial resection and neck dissection and right now they are saying no additional treatment - just followup visits and a PET in a few months.
SCC Right Lateral Tongue T2N0M0 Dx 01/12/06, Surgery 01/25/06. Partial Glossectomy, Bilateral Neck Dissection - 22 lymph nodes - all clear. No radiation.
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#6914 02-22-2006 03:51 PM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 65 | On the resources page of the main web site is a list of the top 50 cancer centers in the US. If I had options available to me, I'd like to be seen at one of those. Go to the resources link and scan about a third the way down the page looking for the link "best hospitals"
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Oct 2008 Posts: 37 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Oct 2008 Posts: 37 | Amy,
I live in Cininccati and just recieved path report saying infiltrating carcinoma on right side of tongue. The ENT who did the biopsy operates at Christ Hospital and wants to resect right side of tougue and do a bilateral supraomohoid neck dissection ; no discussion. I want to discuss options and trying to decide who to see. Looks to me like choices in town are UC Barrett or Vantage Oncology for Centers with rad capability. Where did you go for initial surgery? Did you check out UC Barrett for your follow up?
Thanks! | | | | Joined: Nov 2008 Posts: 72 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2008 Posts: 72 | Amy,
I am from Louisville. My ent is sending me to barrett to dr yash patil for my surgery. I have done a lot of research and the center seems to be one of the best! I am meeting the surgeon Wed. I was diagnosed last Tuesday.
*Shaylynn* 11.25.08 SCC of tongue diagnosed @ age 23 T2N2cM0 12.20.2008 Partial glossectomy & left neck dissection. Clear margins. 6.24.09-Pet Scans show 2 areas of concern 8.5.09-Recurrence-Perotid Gland and swollen node removal 9.29.09 Carboplatin & Taxol x8 Tomo x39 11.19.09 WILL COMPLETE TREATMENTS!
| | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | I would also consider the James Cancer Hospital/Solove Research Institute at Ohio State in Columbus. 90 minutes longer drive, but a top notch facility. The James and Cleveland Clinic seem to flip flop between #1 and #2 in Ohio, depending upon the study you read. I have had nothing but a good experience there. Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I have to agree with Jeff and there will be mnay more than one Dr that you will be seeing. They are as good as you can find.Once they see you and decide what they have to do, in my case, I saw the Same Dr Jeff had, went home and back the next day to see a DR then next day was having surgery.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Oct 2008 Posts: 37 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Oct 2008 Posts: 37 | MrsGrant,
Thanks for the great info. Nothing like getting diagnosed over the holidays eh? Hey, I'm in the "researh phase"; where did you look to satisfy yourself about the UC Barrett Center?
Thanks,
Mike | | | | Joined: Nov 2008 Posts: 72 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2008 Posts: 72 | Honestly I have been in total shock about the whol;e thing...havent been sleeping much at all & worried to death. My mom & dad & husband has done a lot of research. I am one of those people who has to feel 100 percent comfortable with a dr...i meet him tomorrow.
*Shaylynn* 11.25.08 SCC of tongue diagnosed @ age 23 T2N2cM0 12.20.2008 Partial glossectomy & left neck dissection. Clear margins. 6.24.09-Pet Scans show 2 areas of concern 8.5.09-Recurrence-Perotid Gland and swollen node removal 9.29.09 Carboplatin & Taxol x8 Tomo x39 11.19.09 WILL COMPLETE TREATMENTS!
| | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Shaylynn,
Good luck tomorrow. From what I hear you'll be in good hands.
Is your husband or a parent going with you? Two minds are better than one and you've got a lot going on in your head right now. Take a pad and pen to write things down. It's amazing how much information can just go in one ear and out the other when something like this is happening.
I'll be thinking about you tomorrow,
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Write all your questions down on a pad before you go and take the pad with you in the car as that's where my brain seemed to work the best. Leave space in between the questions for the answers and if they don't make sense to you, ask them to explain it better.
You may want to lower your standards down a bit because as good as I feel my chosen team was, I wasn't always 100% comfortable with them. Just choose the best team you meet.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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