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Joined: Mar 2008
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Gee -David and I both going to a CCC and NOT getting a baseline TSH- makes you wonder. Luckily I did get a very complete baseline hearing test sitting in the sound proof booth with pure tone tests. It was funny watching the examiner hide her lips while saying words against a noisy background so that I could not cheat on the speech recognition part. But that had nothing to do with my CCC, instead it was just a throw-away by my penultimate ENT who just could not diagnose the cause of my ear pain.
But there appear to far less (if any at all) hearing issues associated with Erbitux, unlike the platinum-based poisons (oops, I mean chemotherapy)


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Nov 2005
Posts: 1,128
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
In both cases, it really doesn't matter what they were except to satisfy curiosity -- What matters is what they are NOW and how they will be dealt with.

Kinda like a guy missing an arm -- Doesn't really matter what the old one was like, what matters is the new one.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Beg to differ with you an at least the hearing test pre Tx because since there was no baseline I can't prove that the Cisplatin or Tx fro that matter caused my hearing loss and therefore my insurance says it won't consider hearing aids even if I wanted them.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Nov 2005
Posts: 1,128
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
OK, that would be a good reason -- Hearing aids are expensive... Consider discussing that with primary cancer Doc (If you haven't already) -- Won't help you but might help the next victims!


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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