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All the very best for tomorrow Lucinda.
I too looked at the youtube video's briefly and they are very graphic as Ray says.
The good thing is that you will not see any of this. Like many here I healed very well and most people would hardly notice the slight scaring on the neck.
Maybe you might like to keep your own photographic history of your recovery process? I have lot's of photo's starting 2 weeks after surgery of both wrist,thigh,neck but mostly ones I took of my own mouth.
Again all the very best and when able let us know how you are going.


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

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My neck looked funny for awhile but it has all faded now 1.5 years later. I had some reconstructiveplastic surgery this summer to help with the uneveness of my face and to get rid of the trach scar which botherred me but I could have lived with it. My neck looks uneven but there isn't much they can do abotu that- It takes awhile but the body heals itself nicely. Its important to make sure you eat well and get lots of nourishment afterwards because your skin will heal much much better.

I can send you picsof before(if Ic an find them) and how I look now. Let me know

Kate


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
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lucifen Offline OP
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Hi all,
today is 2nd postop day, I'm having my husband take pictures, but he thinks it's a little wierd. So far I seem to be recovering well. The drainage tubes are still active so are waiting until tomorrow to pull those. I'm not quite as swollen as I thought I'd be, I think all the warnings from people had me expecting worse, which is good in my mind! Already got the pathology from then tongue and left nodes and those were all clear! Just waiting for the right nodes to come back, so keep praying! Thanks for the support, this is a great site!
Lucinda


Lucinda 52 y.o. no risk factors -dxed 11/10/09 w/ Right lateral tongue SCC 2cm, bilateral neck dissection with 3 nodes positve on right, Induction chemoTx followed by ChemoradioTx, last Tx 4/3/09, PET/CT 11/8/09 showed no sign of recurrence.
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Wow impressive I was so out of it with medication for a week after surgery that this is impressive two days and being lucid enough to be aware of what is happening is amazing and to be able to make posts Wow is all I can say. Cept maybe keep up the good work!!!


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
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Congrats on getting the all clear so far! I remember all to well having the drainage tubes pulled - yuck! It felt like the tubes were 10 miles long and they just kept pulling them out! I had one out a day. Glad to hear you are doing so well!


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


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How wonderful that you are already posting so soon Lucinda.
Great news that all is clear so far and fingers crossed that the news is just as good for the rest of the tests.
Congratulations
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Nov 2007
Posts: 681
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OK - You must be relieved to be on on the way to being a non-bionic person. I am hoping that you have a good report on the other side.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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lucifen Offline OP
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Well, not so good news on the right side, the regular stains didn't show any obvious cancer, but evidently didn't look quite normal either, so some special IHS stains were done and these were positive in all 3 nodes looked at, two level 1 nodes and 1 level 2 nodes. So the surgeon is suggesting we treat it as if it were negative since that's what it would be if the special stains hadn't been done. But I'm not comfortable with that, since the special stains were done and they were positive. So I guess we are off to get some different opinions from different people.
Lucinda


Lucinda 52 y.o. no risk factors -dxed 11/10/09 w/ Right lateral tongue SCC 2cm, bilateral neck dissection with 3 nodes positve on right, Induction chemoTx followed by ChemoradioTx, last Tx 4/3/09, PET/CT 11/8/09 showed no sign of recurrence.
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Lucifen,

Where are you being seen? Most, if not all, CCC's have a committee approach to evaluating test results which puts many minds into the equation which is usually better than just one opinion.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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My latest cancer surgeon (ENT, Oral Surgeon and Chair of the Department of Otolaryngology/Head and Neck Surgery at UWMC-CCC, aka Dr Haakenslash) called lymph nodes "collection points for cancer".


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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