| | Joined: Mar 2008 Posts: 67 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Mar 2008 Posts: 67 | Charlie,
I am glad you found OCF. It is a tremendous resource to get accurate information about SCC and its treatment.
You can see by my signature that I finished radiation in May. While not 100%, I am enjoying a great recovery from the treatment. I have not found it necessary to always carry water for at least a couple of months now. While my taste buds have changed and I am more picky than I was ever before, food is enjoyable. I still remember how difficult it was to make the transition from a liquid diet to solid foods again but I followed the doctors directions and life began to return.
It really does get better and much more enjoyable. The heavy mucous will go away. My dry mouth is continuing to improve along with my taste buds.
On another front, I stopped using the Biotene products about 2 months post treatment and switched back to regular toothpastes. I still use the flouride trays every night.
Feel free to post specific questions and, like others have asked, provide more details about you and your treatment. You will find the members of this group to be helpful and sincere.
Good luck with recovery from treatment!
Frank
SCC Right Tonsil Dx 2/25/2008 at age 43
T1N2B M0,Stage IVa
8mm primary removed 3/5/08
4cm lymph node removed 2/22/08
2 additional sub cm nodes
Tx at Stanford: 30 x IMRT, 2 x Cisplatin,
Started radiation 3/27/08, Completed 5/7/08
p16+, HPV 16+
2 Year Post-TX PET CT 5/10 - CLEAR
| | | | | Joined: Nov 2008 Posts: 12 Member | | OP Member
Joined: Nov 2008 Posts: 12 | Thanks for all the good information for me as a new member.
I've tried to update my profile to show more information, but no matter how many times i use the update feature, nothing changes.
\
Can anyone suggest what I may be doing wrong?
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Umm, at the end of it all, there is a Submit Button which I am sure you have pressed...
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Charlie, another good idea is to use Biotene products. I find that the oral gel helps me sleep much better at night without constantly waking up with dry mouth. I use the mouthwash 3-4 times a day and carry a bottle of the liquid spray with me to use while at work. It's available at most drug stores and supermarkets. A little pricey but worth it.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Charlie,
I'm new to OCF too. I wish you luck in your recovery. My cancer was removed surgically so I cannot offer any personal information about chemo and radiation.
My only suggestion would be take care of yourself emotionally also. That has been the really hard part for me.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | |
| Forums23 Topics18,261 Posts197,168 Members13,351 | | Most Online1,788
Jan 23rd, 2025 | | |
|
