| | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Maher,
I was happy to hear the good news for you and I am sorry to hear that your wife has multiple myeloma.
In Jan. 2002, one of my partners in my dental practice was diagnosed with multiple myeloma. He has had some ups and downs and is still practicing dentistry full time. There are many treatments available and one may work for quite some time and then a switch to something else can be made.
There are support groups on the web and if I can help you in any way, please let me know.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Oct 2008 Posts: 9 Member | | OP Member
Joined: Oct 2008 Posts: 9 | Thank you Jerry, I would appreciate all the help I can get | | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | This site is probably the most informative one that I know of. I have been doing their local walk in Philadelphia for several years and they have raised a great deal of money for research. http://www.multiplemyeloma.org/If you or your wife have specific questions, I will discuss them with Jeff. If you would like, I will ask him if he would be able to communicate directly with either or both of you. Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Oct 2008 Posts: 9 Member | | OP Member
Joined: Oct 2008 Posts: 9 | again thanks Jerry, We have lots of questions and meny things to learn and your offer would be a great help.
We are still gathering information about her condition.
I spoke to her DR today and went through the lab report and MRI and Xray there is some starnge things that needs clarification I will prepare a list of things that could be helpful in making sence out of all of the things that is going on.
Thanks
Maher | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I remember waking up at Ohio State James James Comprehensive Cancer Center on Aug 3rd of 2007 and being told I didn't need rads or chemo because all of the cancer had been gotten. Knew that was wrong by the feel in my mouth. Dec 2007, more biospsies , part of right side joined the left side and took a walk. Was then told I needed rads and chemo. Lost my teeth, had rads and chemo after and then rad seed implants in my tongue..But as they say,, I am alive and kickin. Stll have problems but still laugh and enjoy life as usual.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 309 | you are such a great source of inspiration, Jim. Keep on keeping on ... and trust your gutt. I pray your problems diminish and your enjoyment in life is enhanced and you live a long, happy life, with lots of laughs included 
Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
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"Those who think by the inch and speak by the yard, should be kicked by the foot."
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