 
#84045 11-12-2008 05:32 PM | Joined: Nov 2008 Posts: 51 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Nov 2008 Posts: 51 | I don't know if it would even be possible, but I think it would be really cool if there were a chat room associated with the site.
Cg to partner, Stage IV SCC of upper left mandible, met to lymph nodes. Dx 4/1/2008. Inopperable, 3 rounds of chemo followed by 2 rounds of chemo with 33 tx of radiation. Growth started again immediatly following. She crossed over November 30, 2008.
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | This idea has been brought up many times but due to the multinational nature of the site, logistics and the additional server bandwidth, costs, etc., it's not really practical at this time. Brian may have more to add on this.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 309 | There are several options that do not use your bandwidth at all, or very little if using java applets etc. I personally am not into chat rooms anymore - was heavily into those in the 90's when I was administrator at one, but I do know with all they have available today it is easy and cost effective to implement - as in free for the most part - depending on your desires.
Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
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"Those who think by the inch and speak by the yard, should be kicked by the foot."
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | I agree it would be a little easier than posting...and we are all together...
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | EVERY YEAR SOMEONE BRINGS IT UP. You want to chat with each other, pick up the phone, or go to a private chat room, there are tons of functions for this on the web, almost all for free if that is what you want. Your profile has provisions for you to list the types of other contact functions on the web (and your screen names etc. that you use). The boards are this way for a specific reason. The threads are read by hundreds of lurkers, they are cataloged by search engines, and the answers to the questions asked here are preserved forever in the history of the board, so new people can search the board for answers before they ask the question that has been answered 300 times before, and answered with good, compassionate, accurate, and usable information. The odds that there would be a large number of you on the boards at the same time, given all the time zones, and even countries, would mean that finding someone here that you actually wanted to talk to at that moment would be slim. Take at look at who is on line now. 3 people. The idea has been explored and decided against.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Good for you Brian It was always amazing to me how many "good ideas" people had to "improve" projects I ran that almost always had already been considered and declined for various reasons. Pretty soon I had a standing rule that all such suggestions required a commitment by the suggester to staff, fund and run the entire project without raiding my resources. Not only did the flood of old suggestions stop, a couple of really good projects surfaced with dedicated proponents I could work with. Not a suggestion, just an empathic response. 
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Good answer Brian and just what I would have expected. That's why you are our leader.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Geez- Glad I didn't suggest it.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Nov 2008 Posts: 51 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Nov 2008 Posts: 51 | Wow, I certainly didn't mean to sound like an idiot nor did I mean to insult people. I appreciate the explanation...it makes sense....just not the little slap.
And yowser - I AM sorry I brought it up at all.
Last edited by justjan123; 11-13-2008 05:32 PM.
Cg to partner, Stage IV SCC of upper left mandible, met to lymph nodes. Dx 4/1/2008. Inopperable, 3 rounds of chemo followed by 2 rounds of chemo with 33 tx of radiation. Growth started again immediatly following. She crossed over November 30, 2008.
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Don't worry- I was admonished for suggesting a phone line. A little slap and tickle can be fun but just a slap stinks! LOL
Last edited by suemarie; 11-13-2008 06:03 PM.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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