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| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I feel so bad for the 2 of you. I just don't have any answers or wisdom to pass on, just want to wish you 2 the very best and the usual take it one day at a time. I sure hope they get you some good pain meds.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2008 Posts: 51 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Nov 2008 Posts: 51 | [quote=darkeyedlady0]Thank you but I don't think that is covered under our plan in Canada...Does it work or you don't know yet...I really need something that works... We were given a trial sample of that drug a while back but only 14 days worth and didn't want to start it in case we couldn't get more but if it works it might be something to try to fight for... [/quote]
I hope you find something. I know for us, right now, pain management is at the top of the list. I don't know if it works yet, but I'll let you know when we get it. I tried to get it filled last night but the doctor apparently has to call the insurance company. So now I need to call the doctor and get them to call the insurance company.
Cg to partner, Stage IV SCC of upper left mandible, met to lymph nodes. Dx 4/1/2008. Inopperable, 3 rounds of chemo followed by 2 rounds of chemo with 33 tx of radiation. Growth started again immediatly following. She crossed over November 30, 2008.
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