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#83437 11-03-2008 08:37 PM
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Jimbo Offline OP
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I had my first scan since completing treatment today. Doctor said everything looked good. He mentioned six months until the next scan. I was under the impression it would be sooner than that early on. What have others experienced?


Dx 5/08
Stage 3 SCC
No primary ever found
Completed 35 IMRT tx 8/13/08.
Taxatol, cisplatin and erbitux weekly for 8 weeks.
No surgery
PEG
PET/CT Clear 11/08
Jimbo #83438 11-03-2008 09:16 PM
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I am not much help on proceedure frequency of scans...but I want to congratulate you on finishing treatment. I too have just finished treatment and have had office visits post surgery at one week...one month and six weeks...but no scans yet...but this is also in Canada which I am learning practice differently and I think it also depends on your case. Every person requires different proceedures and attention...your doctor must feel confident that things will be good...

I too am having a bit of trouble worrying about or getting it through my head that my doctor has said he got all the cancer and the nodes were clear...even though my mind goes a muck..but I trust him...Good luck and it is great that the treatment worked for you!!!

Dianne


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
Jimbo #83439 11-03-2008 09:16 PM
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Jimbo:

Which doctor is this? We all have so many doctors.

I see my ENT monthly still and Im 16 months post rad/chemo and 6 months post recurrance where I only had surgery. Chemo oncologist and rad oncologist are both every 6 months since 3 months post rad/chemo.

Most important thing you wrote was..... 'everything looked good'. Thats excellent news, congrats!!!!



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Jimbo Offline OP
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Doctor was the MO, after he reviewed the scan with the RO. Will see my ENT in a week or two.


Dx 5/08
Stage 3 SCC
No primary ever found
Completed 35 IMRT tx 8/13/08.
Taxatol, cisplatin and erbitux weekly for 8 weeks.
No surgery
PEG
PET/CT Clear 11/08
Jimbo #83442 11-03-2008 09:48 PM
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Its not easy figuring out which doc does what sometimes, at least for me it wasnt. Before I had cancer I had no idea what an oncologist was. For me, I fell into a routine of seeing my ENT most often. Its kinda like he is the one who is in charge of my care but I still see the others from time to time just for check ups, which is a good thing smile Then there is also the dentist, oral surgeon, nutritionist and family doc.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Aug 2008
Posts: 531
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I just have the one doctor who has a partner,,,my family doctor...possibly a diabetic doctor...I have no idea what doctor takes care of what...lol...talk about no idea...

Dianne


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
Jimbo #83448 11-04-2008 02:38 AM
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jimbo
a lot depends on what shows up on your scans as well as what type of scans you have . My first Post TX scan was an MRI ordered by the ENT in Jan a little less than 3 months after TX ended last Nov. It was all clear, then a PET/CT scan was scheduled by the RO for May (six months after TX). Unfortunately I got an overcautious resident reading who plugged in "could be cancer" disclaimer so yet another PET/CT was done last month in October (11 months post TX). Congratulations on a good report.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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I had a PET/CT scan just under three months out from treatments, then another one 2 months later, due to what turned out to be false positives on the first one. Both ordered by my MO. My ENT/Surgeon and my RO are not enthralled by scans.

I am coming up on the one year anniversary of the second scan, but have not yet heard anything from any of the 3 about a repeat, and I just had my latest checkup with the ENT/Surgeon yesterday. I see the RO in December and the MO again in early January, so maybe he will order one then.

As you can probably gather, this is a highly individualized thing, depending upon the institution and the treatment course.


Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
Jimbo #83455 11-04-2008 06:30 AM
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[quote=Jimbo]I had my first scan since completing treatment today. Doctor said everything looked good. He mentioned six months until the next scan. I was under the impression it would be sooner than that early on. What have others experienced? [/quote]

Hey Jim

This is about the same time frame I had. Just had those first two, since then none since I have been pronounced all clear as well. Fast Approaching two years at this point.

Kevin


18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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I had my first post Tx CT appx 3 months post Tx and it showed all clear in the OC and neck but had 2 spots in my lungs, that weren't there pre Tx, that as the radiologist said "could not be excluded". Both my RO and my Mo said DON'T WORRY, (yeah right) and said that IF I WANTED they would schedule another CT in 3 months. Well I had my 2nd post Tx CT in another 3 months and again everything clear in the neck and OC and the first 2 spots in the lungs were gone BUT there were 2 new ones in the lower portion of my lungs. Again they said "not to worry", (yeah right) so they allowed me to get another one 3 months out and finally the 3rd CT in 9 months post Tx was all clear. Since then I have only had 1 more and as far as I know none are scheduled.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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