Previous Thread
Next Thread
Print Thread
Page 2 of 6 1 2 3 4 5 6
debandbill #83282 10-31-2008 05:19 PM
Joined: Sep 2008
Posts: 250
Lani G Offline OP
Platinum Member (200+ posts)
OP Offline
Platinum Member (200+ posts)

Joined: Sep 2008
Posts: 250
Deb,

Yes, I live with my husband and one of my sons. Even if they're not home, my brother lives just down the street and there's always 911.

I'm trying to get food down. I managed a soft-boiled egg and about 1/4 of a pancake this morning, and my husband is picking up some cheese & broccoli soup from a restaurant that I really like. I'll try to get more than that down before the night's done. Probably some mashed potatoes with milk & butter and some V-8 juice. And I'll try a midnight snack shake, too.

I know, it's not enough, but I've got to build up again. I've been told that your stomache doesn't shrink from not eating, but I don't believe them. Yesterday was just a soft-boiled egg, and the day before it took me all day to eat one blueberry muffin (with a ton of butter).

Believe me, I would love to relieve you of some fat cells. I'll try to sop up all that strength you're sending, though.

Lani


SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
debandbill #83283 10-31-2008 05:31 PM
Joined: Mar 2008
Posts: 404
Likes: 2
"OCF Down Under"
Platinum Member (300+ posts)
Offline
"OCF Down Under"
Platinum Member (300+ posts)

Joined: Mar 2008
Posts: 404
Likes: 2

Lani,

I also hope that everything goes ok until Tuesday. Thinking of you.

Take care, Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
Lani G #83285 10-31-2008 05:32 PM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Poached eggs, pancakes, cereal that absorbs milk fast, and fried red tomatoes are my main foods. Fried tomatoes are coated with either pancake batter or mix. Delicious...Lots of oatmeal , cream of wheat and mix in some coco wheats and some sugar. Toast that isn't dark with lots of butter.. Just a few suggestions for you to try.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #83288 10-31-2008 06:03 PM
Joined: Sep 2008
Posts: 250
Lani G Offline OP
Platinum Member (200+ posts)
OP Offline
Platinum Member (200+ posts)

Joined: Sep 2008
Posts: 250
Karen, Thank you.

Jim,

I've never heard/thought of tomatoes dipped in pancake batter. I imagine that would solve the problem of them being too crispy. I'm going to try that one.

I tried oatmeal for the first time in my life only after OC. I had hoped I would really like it, but I couldn't even get it down. It just made me gag. I've never tried cream of wheat. Mom just never served us hot cerals for breakfast as kids. On cold mornings she always had vegetable soup for us.

My speech/swallow therapist laughed when I told how I would make light toast and butter it on both sides. Why toast it in the first place? Maybe it tastes different, or maybe it's psychological, but I was enjoying my toast with peach preserves and a softly fried egg on top. I haven't had that for a while. Maybe tomorrow morning I can give it a try.

Thanks for the tips.

Lani


SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
Lani G #83342 11-01-2008 05:30 PM
Joined: Nov 2005
Posts: 1,128
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
Grits with butter! Get instant grits -- Use that Publix!!

French Toast!

Don't forget this is EggNog Season!!


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #83349 11-01-2008 06:11 PM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Most peiople haven't heard of fried red tomatoes. Just don't burn them. Just dipped in the dry mix is just as good as the batter. you will love them. I been frying them for close to 50 yrs. French toast homemade is good, but the frozen doesn't work for me. I can't even gum them to be soft enough to swallow.Have a great weekend all.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #83354 11-01-2008 07:04 PM
Joined: May 2008
Posts: 551
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: May 2008
Posts: 551
I second the poached egg suggestion - they've been a staple for me. My mom taught me her idiot-proof cooking method: boil water in a pan deep enough to cover egg, when its at a rolling boil, crack egg into water and then turn off the heat (or take it off the heat if its an electric stove) and let it sit in the hot water until the yolk seems firm. Using a slotted spoon, remove as much of the egg from the water as possible. Figuring out how long to leave the egg in the water is the finesse part, but I think I do about 5 minutes or so. This method is so moist, you don't even have to chew and it just slides right down.

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Lani:

Please take care of yourself.

I was raised by my grandmother who was a farm girl. She grew up learning how to stretch a meal. She made wonderful food which included fried red tomatoes. She dipped them in flour and fried them in lard. I tried them this past summer but the taste was still a little off. Maybe next summer I will be ready for tomato sandwiches. She also made fried zucchini. Sliced zucchini dipped in eggs and fried in lard. Thats one thing that tasted great last summer.

French toast and also pancakes are very easy to eat too. Use lots of butter and syrup and pancakes will melt in your mouth. Cream of wheat is something I eat almost daily with butter and sugar.

Hope you try the choc/peanut butter shake, it is loaded with calories and if you have 2 per day it will help you to gain some much needed weight. You will feel so much better if you are getting proper nutrition. My thinking is that since your weight is so low it wouldnt hurt you to be getting way over 3000 calories per day. At one point I had been getting at least 5000 per day for several weeks and didnt gain an ounce, and have no thyroid problems. Your body just burns it up so fast when you are recovering. I recently gained 10 pounds but it wasnt due to overeating, it was the steroid medication Ive been on. Now Im off of it, the 10 pounds dropped right back off.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #83382 11-02-2008 11:48 AM
Joined: Sep 2008
Posts: 250
Lani G Offline OP
Platinum Member (200+ posts)
OP Offline
Platinum Member (200+ posts)

Joined: Sep 2008
Posts: 250
Christine,

I'm just laying down today mostly, since the pain only gets really bad when I'm up. And I am trying and succeeding to build up my food/calorie intake, though I know not nearly enough yet.

Just so no one worries, my computer crashed yesterday, so my access to this site (and the rest of the world) is limited to when I can borrow my son's (And manage to sit in this horrible chair smile ). I'll check in when I can.

Lani


SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
Lani G #83391 11-02-2008 06:40 PM
Joined: Jan 2006
Posts: 756
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2006
Posts: 756
Likes: 1
Hi Lani,

I was worried since I didn't hear from you � I�m glad it was because of the computer. Perhaps that was a message for you to take it easy and rest! I wish you only good news from the doctor this week. And remember to eat!! Sending lots of prayers your way.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
Page 2 of 6 1 2 3 4 5 6

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,264
EzJim 5,260
Brian Hill 4,918
Newest Members
duchess, Firoze, jllawilsns01, TS75, makkie
13,316 Registered Users
Forum Statistics
Forums23
Topics18,246
Posts197,130
Members13,317
Most Online1,788
Jan 23rd, 2025
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5