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#83255 10-31-2008 08:25 AM
Joined: Mar 2006
Posts: 114
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Mar 2006
Posts: 114
Well, I've been lurking in the background but not actively posting for quite a while. I had hoped that the cancer was behind me after a recurrence last year and subsequent surgery and treatment.
But for several months I've had a growing number of pains in my chest and upper back. They sent me for a chest x-ray when I first was feeling some back pain in June, and it didn't show anything. But the pain has gotten worse so they sent me for a PET/CT. The PET/CT correlate indicating metastasis to both lungs.
Met with my ENT/cancer specialist yesterday. He feels surgery is not a viable option. He also feels radiation will not be a viable option due to the number and location of apparent malignant areas, but I'm off to the cancer center now and they'll make that call. Looks like chemo.

I know this is a very broad question and everybody is different, but what would be likely for me in terms of chemo when that's the only treatment available? I've had Cisplatin both times before (Cisplate, Taxotere, and 5-FU the second time) and ended up with recurrences. Would they likely put me on a heavier dose of chemo?

Basically, before when I was on chemo, it was being used - as I understand it - as a CYA - with radiation and surgery being the primary attacks and chemo being used to increase the chances we got it all. In this case, chemo will likely be used as the ONLY form of attack. So I'm wondering if I can expect it to be a more harsh approach or significant dosage.

thanks,
Steve


Age 41 - Stage 2 SCC tongue Dx 2/06. Cisplatin x3, IMRT x35. Mets to neck node discovered 7/07. RND 40 nodes removed, margins not clear. Cisplatin, Taxotere, 5-FU Fall 07, then IMXT/Erbitux for 7 wks. Inoperable mets to both lungs and pleura Dx Oct'08. 4 cycles Carboplatin, Erbitux, 5-FU so far.
Steve J. #83258 10-31-2008 10:29 AM
Joined: Jan 2008
Posts: 706
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jan 2008
Posts: 706
You may be eligible for a trial. My husband was on one at Sloan but unfortunately it did not work for him. He is now on Taxol. He too had radition and Cisplatin following his surgery. He has also had Erbitux and Taxotere. I'm not sure if they will give you a stronger dosage but my husband is getting his infusion once every three weeks. Good luck and let us know what you/they decide.

Sue


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
suemarie #83293 10-31-2008 07:07 PM
Joined: Mar 2008
Posts: 404
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Steve,

So sorry to hear about your recurrence.

Unfortunately I don't have any information from my experience that you wouldn't already know about regarding Cisplatin and radiation, I just wanted to wish you good luck and let you know that we are thinking of you.

Take care - Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
Karen Rose #83306 10-31-2008 08:32 PM
Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7

Steve:

Want to wish you the best with your course of treatment. Im really sorry that you need to continue going thru this battle. I dont have experience at all with the questions you are asking. I only wanted to say best of luck with this and that you arent alone.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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