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Pete D #83100 10-28-2008 02:38 PM
Joined: Jun 2007
Posts: 595
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Jun 2007
Posts: 595
I like David use 1.1 sodium flouoride gel every night and also floss before using the trays, my MO says I will use this nightly for life. Hope tthis helps. Semper-Fi Bob


Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
Bob Whyte #83104 10-28-2008 03:14 PM
Joined: Jul 2008
Posts: 228
Gold Member (200+ posts)
Gold Member (200+ posts)

Joined: Jul 2008
Posts: 228
I am a stannous fluoride kind of girl - but I do have some slight staining from using it, mostly on the side that I don't chew on as much. I do 10 minutes (or sometimes a little more if I get distracted) every night before bed. I started using the trays about a week before radiation started and I stopped using the trays for about a week or two during treatment and just brushed my teeth with the fluoride. Me and fluoride are in for a long term relationship seeing as I'll be using it for life.


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


travelottie #83120 10-28-2008 07:14 PM
Joined: Jan 2006
Posts: 757
Likes: 2
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: Jan 2006
Posts: 757
Likes: 2
Travelottie, I had severe swelling of my tongue for months after treatment. The prednisone did help, but took a long time. Or perhaps I just finally started to heal! Who knows for sure.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2025 (ORN of lower jaw)
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