| Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Amy, Well I'll be thinking about you - while curled up on the oouch with a steaming cup of hot chocolate.  I'm glad I got those plants in today, because it's only supposed to get up to 65 here tomorrow, and breezy. That's just too cold for me to be outside gardening - especially skinny as I am. I reach for a sweatshirt at 80! Susan, this is at or near record cold for here at this time of year. And snow flurrie up there already? The squirrels' tails are pretty fluffy, too. All global warming aside, this might be a pretty cold winter. Thank goodness our cold snaps only last a few days at most, or I'd never come outside until Spring. Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | You poor Florida gals!!!! Here its snowing like crazy right now. I think I want to trade you  ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | Amy, Thinking of you this morning, I hope all goes easy today.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Wait until you are finished Tx, everyone will constantly ask you "how are you feeling?" I still get asked that agonizing question by everyone that hasn't seen me in like 3 weeks and I'm over 2 years out!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Christine,
Yup, You Betcha! This is the place for me. Growing up in Upstate New York was responsibible for my childhood couch potato training. I do miss mountains, though. I lived in Ojai, California for a year and that place was incredible. Here in the flatlands I had to hire out for a truckload of dirt for my flowerbed "hill" in my front yard!
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
| | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Amy,
I see you're back. How'd it go?
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
| | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2008 Posts: 130 | All went well. Really sleepy, took a very long nap this afternoon. I did have to have the car warmed before I would go outside though. BRRRRR. 57*F here now. I did the "up north bite" I miss the snow, and really miss the change in seasons, but you can keep the cold. I tell people I was colder in Florida than I ever was in Alaska.
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side. ND March 2, 2009 reoccurance dx'd Aug 19, 2009
| | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Amy,
Well then it's time for you to have a new thread. "Panic Attack" no longer suits you. You "sound" like you're doing just fine. Keep it up.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
| | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2008 Posts: 130 | How about COLD N FLORIDA? and as a side note, I found out today that I am HPV16+
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side. ND March 2, 2009 reoccurance dx'd Aug 19, 2009
| | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Absolutely! It's already 53 and falling here. Projected at 42 degrees tonight. I know it's worse up there where you are in LA (Lower Alabama). And no, I don't miss snow, or sleet, or ice - or even the seasons. I have silk fall leaves in a wreath on my front door and autumn-colored flowers in the bed. We have seasons, just different. Like we don't rake leaves in the fall. We have a ton of leaves to rake up in the spring, though. My house is surrounded by huge oak trees.  I imagine the HPV results answered some questions for you. I never needed to wonder why. Smokin' & drinkin' is what did it to me. Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
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