#82916 10-26-2008 05:26 AM | Joined: Oct 2008 Posts: 6 Member | | Member
Joined: Oct 2008 Posts: 6 | hi,
Not sure if anyone is still accessing this frum. I am a CG to my mum53, with SCC of Buccal Mucosa, Stage 3, received radiation for 45 alternate days in Hyd, India.Unfotunately had a recurrence after 3 months, and now refused to take chemo or surgery.On alternate medicine now- Intravenous Vitamin C. Wanted info on Therabite for her situation unable to open mouth.please reply if anyone has answers.thanks
seema | | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Originally Posted By: seema Wanted info on Therabite for her situation unable to open mouth. Seema, do a search of the forum on 'therabite' and you will get a lot of hits. Here is a link on the OCF site that will be of interest and has a link to study on effectiveness of Therabite and other treatment: http://www.oralcancerfoundation.org/dental/trismus.htm
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Welcom to OCF Seema.
There is tons of info on here about trismus and the therabite. You can use the main site and do a search or also search thru the forum posts.
How far can your mother open her mouth? Does she see a physical therapist or speech therapist for help? I saw one of yor other posts said she was in pain. Has she done any hyperbaric treatments? Where are you in PA and where is she being treated?
Sorry for all the questions, it makes it easier to help you if we know more info.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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